Tag Archives: neurodiversity

the Bat Cloud!

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So my amazing sister has been feeding me with a steady diet of awesome … well forever … but more recently fascinating digital things. Digital things that include over 60,000+ years of astronomers, collaborative digital art, nonlinear culture, etc.

Today’s feast was the bat cloud.

… and I’m not going to even explain it. I’m going to leave your journey to you.

But on brand I am going to tangent off about myself.

There are many things that I love about my sister, and what’s on my mind at the moment is that gold that drops without need of preamble and context. The context is largely unnecessary in a lot of neurodivergent conversations. Especially the ones that fall in the category “I found this shiny rock that I want to give it to you.” They are the start of a conversation and add to your dialogue that may have been on hold for minutes, months or years – it’s irrelevant. The relevance is that it’s additive. It’s an instinctual “Yes and…” game.

Recently, we were talking about the indigenous astronomy from an article. Astronomy is very helpful as a calendar to track seasons, and in the outback sky the viewing is pretty incredible. The Boorong constellation Djuit – the red backed parrot contains Antares – referencing both the red supergiant star (α Scorpii A) and it’s bluer companion (α Scorpii B) representing the male parrots red back and blue halo feathers. Ngarrindjeri call Antares the “red man” (Waiyungari) and talk about its changing brightness in the stories.

Indigenous Australian calendars recognise as many different seasons as the region produces. The Tiwi seasonal calendar has 3 major and 13 minor seasons as fits their tropical island climate. The D’harawal calendar has 6 with rules and observations that are relevant for where we are on the south east coast. Ngoonungi is when the flying foxes appear just before the end of year heat starts.

Serendipitously after my conversation with my sister on indigenous astronomy I was at Sydney Writers Festival where I happened to catch Bruce Pascoe and Ray Norris talk about their latest book on (you guessed it) Aboriginal astronomy, Big Sky. It was a fascinating talk full of nuance and the wonderful dry humour of Bruce. Big Sky was unsurprisingly scoped up from the festival bookshop but I managed to get a book signed for my nephew over in the Northern Hemisphere.

Antares appears white in this WISE false-colour infrared image
Antares appears white in this WISE false-colour infrared image (Wikipedia)

My “Macaulay Culkin Christmas (in New York) pt1

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The story of my Macaulay Culkin Christmas (thus far)! I’ve been updating on Insta and it’s linked meta platforms.

I’d been toying with the idea of getting out of my regular reach for the holidays, but come the Fri 19th Dec when I was putting the mountain of projects on hold, and saying goodbye to friends departing long term. I finally got to 11pm and said “enough”.

Within 48hrs, incl. one final neurodivergent bookclub, and a Christmas themed D&D game with some close friends, I’d recovered enough mental functioning to make a plan. 10 hrs prior to boarding the plane I booked my ticket out and a place to stay when I landed.

I have had an overarching need is to start repair on my brain. 2025 was the hardest year yet. Just when I’d thought that burnout had hit it’s core and I am at my last reserve I found myself in another layer, and in myself another layer of resilience. I could feel my sense of self being stripped away as I lost the more confidence, and watched my skills evaporate as if I was in the final chapters of my own personal Flowers for Algernon.  It made sense to go to my upside-down – where the weather was cold, my expected outcome was not failure, and people called me friend.

The flight out had a hicup but I’m used to that now, and what would have been a problem in the past is now a bit of business.

I landed at Newark Airport NYC and made my way to my excellent tiny hotel Pod51. The rooms are Piet Mondrian themed! I braved the chill and found a pretty jumping Pizza store on 2nd Av blaring Latin American dance music for a few partying folks. Was a good vibe.
I escaped with 2 slices bigger than my head(!), got back into my room by midnight, watched local news and had pizza in bed. SUCCESS!

Since then Jordan at the pizza store will slip me an extra slice of some garlic bread when I go. Great guy.

Slice the size of my head 
Mondrian room

Next day I caught up with my friend Dale @ Beyond Sushi for great vegan Sushi lunch, before his expert tour of Midtown & Central Park West. 

I took myself to Macy’s to buy myself a gift, for Christmas Day then Bryant Park skating rink.  Then home to prepare to foil the sticky bandits. The gift is more pants for the cold – is up or in wearing two pairs. I freaked out a little the first time I went to the bathroom and forgot. I thought I’d turned into Ken.

After spending Christmas day wandering through Central Park, finding a diner in the Upper East side NYC and generally being a badly organised tourist (by design!) I was treated to a play Marjorie Prime (by 2nd Stage) by my friend Dale. While we were eating all the Tofu at Ollies Szechwan I happened to glance out the window and it was snowing!? I’ve never seen snow in my 39yrs (and some months*) existence so this was pretty AuDHD brain popping. We had a great conversation on the issues with AI, and a wonderful show in an incredible theatre. Adding a Christmas snowfall definitely lightened the ToDo column of the bucketlist.

*177

I’m very grateful to Dale who’s been exceptionally patient with my poor planning and touristy excitement as I repair my broken brain on this trip. Also he keeps me eating well – difficult to do solo when burnt out.

Insights from the 2024 Global Workplace Report

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The XYZ of Work-Related Stress: 

Commentary on Gallup 2024 State of the Global Workplace report

Hi folks,

I was reading this week’s “Nightingale” – Data Visualisation Society eNewsletter (named after Florence, Nurse-Statistician-Legend) and there was an interesting article breaking down the 2024 State of the Global Workplace report by Gallup.  The report was arguing that people’s mental well-being has deteriorated in the past ten years (I’m finally trendy! Yay!). 

However, in her article “the XYZ of Work-Related Stress”, author Shanfan Huang, makes a great point that different generations have different expectations of mental health as a priority at work.  They also have a different framework around reporting and talking about workplace mental health.  Overall, the trend could be quite good as it suggests that there could be a stronger conversation on mental health challenges and firmer boundaries.  We also need to take into account that different generations have differing priorities for a number of reasons.

It’s worth having a look at and poking around the Nightingale site, if not for tips and “horror stories” then definitely for the beautiful Information is Beautiful award that the DVS is famous for!

Have a great week
Heath

Chart explaining the top 3 stressors of Generation X, Y and Z

Design by Shanfan Huang

Resources

  1. Shanfan Huang (Dec, 2024) The XYZ of Work-Related Stress, Nightingale, Data Visualization Society
  2. Jon Clifton etal. (2024) 2024 State of the Workplace, Gallup.com
  3. David McCandless (2024) Information is Beautiful, Data Visualization Society

Navigating Burnout: Resources for Neurodivergent Individuals

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2

2024 update

7–11 minutes

Hi folks,

Following on from the post last year[1], there have been a solid quantity of new articles on avoiding and dealing with burnout. Considering we are in the Holiday season we thought it might be worthwhile to share a select number of them with you. Please see the previous (above) post for the definition of burnout, the differences between Workplace burnout and Neurodivergent burnout, and tips for recovery*.

Dora Rainmaker and team have been key researchers into neurodivergent burnout in recent years. Their 2020 paper “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew: Defining Autistic Burnout.

Autism in Adulthood defined it as the result from chronic stress in life and a mismatch of expectations and abilities without the right supports, which is characterized by pervasive, long-term exhaustion …, loss of function, and a reduced tolerance to stimulus[2]

One of the main issues with burnout is that it is often coupled with depression and lowered self-worth.  Prolonged masking of ourselves is not healthy, and the downward spiral of productivity due to exhaustion will leave a person wondering their capabilities. It can be additionally difficult as neurotypical friends, family and colleagues may not understand what it is we are going through, which affects the efficacy of their support [2].

Last month Diversity Council Australia hosted a panel discussion unpacking the evidence that burnout is a inclusion issue[17]. A key concern was the compounding impact of systemic barriers, microaggressions, tokenism, or outright discrimination, experienced by marginalised people. It was highlighted that for neurodivergent employees, these factors can add additional cognitive and emotional labour, leaving them more vulnerable to exhaustion and burnout.

One of the key takeaways from the event was the need for proactive, inclusive solutions to prevent burnout. This pervasive issue is not just a personal problem but a systemic one that can be prevented by fostering more inclusive, respectful, and supportive workplaces. As organisations seek to build resilient and sustainable workforces, it’s clear that prioritising inclusion isn’t just a “nice-to-have” – it’s a necessity for the health and wellbeing of all employees[17].

In his recent Art of Autism article, ND Therapist Robert Schmus[3] does a great job of highlighting some of the key differences and additional load, separating Neurodivergent burnout from the classic workplace definition. For him it was an intense brain fog – a difficulty of linking ideas together in an extensive executive function breakdown, coupled with heightened anxiety.  When burnout is left unchecked, these symptoms build up and can lead to shut down for an extended period of time. Robert’s experience feels very familiar in my recent experience of burnout as a downward spiral.

Robert goes on to highlight some of his key drivers of burnout, including prolonged masking, trying to meet unreasonable deadlines, being in hyperfocus for long periods of time without the necessary recovery time, and having far too many urgent deadlines at one time. Unclear targets and goals, and trying to hit targets in suboptimal conditions are some of the key stumbling blocks for ND folk. A poorly set up environment can make “deep work” difficult to achieve. In order to “catchup” people report working late at night or during holidays in addition to their regular hours. This can eat into recovery and social time, and further eroding support networks.

Devon Price gave a sobering account on research into the permanent effects of late-stage burnout.  However, the recovery process is not about going back into the grind.  It is about embracing different ways of achieving your goals, and sometimes setting different goals all together[4].

So, what do we do about Burnout?

Over the past year there have been a number of high quality resources and supports from within the neurodivergent community, as well as mainstream organisations, like Arts Centre Melbourne’s Arts Wellbeing Collective, and Black Dog Institute[18]. In this post I’ll highlight resources from within the ND community.

Rachel Worsley and Kate Hardiman’s podcast “Neurowork” is a collaboration of Neurodiversity Media and Unify 360’s workplace DEI consultancy. Neurowork focuses on managing creating inclusive environments, and has a number of recent episodes focusing on avoiding overload and recovering from burnout[5]. The importance of taking short and long recovery breaks is often overlooked. It’s important to short circuit fatigue, exhaustion and burnout before it becomes entrenched, and addresses Robert Schmus’s warning about multiple competing priorities and long chains of hyperfocus.

Neurowork also advocates for the need for clear communication[6]. Understand the steps and context of the work you are undertaking is essential to achieving better results with less stress. Regular open communication is essential for solving unforeseen issues promptly as a team, and supports individual DEAI based accommodation needs. Neurodiversity Media has some great resources and advice for creating environments for neurodivergent individuals and teams to thrive at work[6].

Kristen Hovet is a medical researcher and Science communicator behind the Other Autism podcast. In her episode “Autistic Burnout, Shutdown, and Social Hangover” she points out that flexible working arrangements are a big piece in reducing overload and burnout. Working from home arrangements can be perfect for deep work, and reduce social hangover and sensory overload[13]. This tracks well with the DCA Burnout and Inclusion findings that flexible working arrangements have been proven to positively impact employee mental health[17].

Reframing Autism’s Intersectional Advisory Committee released the exceptional Welcome Pack resource[7] in March this year. It’s a 200pg guidebook that is easy to read and paired with a 30pg workbook to help getting the clarity on what needs you have by asking the questions you may not have considered. It was very much needed and filled a gap that has been talked talked about in the community for a long time.

Reframing Autism also has a large variety of other resources and training webinars including a webinar training series on Autistic Burnout Resistance and Recovery for individuals seeking to understand the topic as well as managing their own and others recover from burnout. There is also a separate training module for mental health professionals[16].

ASAN AUNZ released their Self Advocacy guide last month[8]. It’s a document to help with the communication of needs, accommodations and boundaries. They have also released an app to help with communicating support needs and listing support services. ASAN in North America has equivalent resources to help guide the process to equity[9].

And it would be remiss of me if I didn’t mention two incredible books that landed this year, Jessica McCabes “How to ADHD: An Insider’s Guide to Working with Your Brain”[10], and Ludmila Praslova’s book “the Canary Code”[11]. Both of these are game changers and both are packed with resources.

Ludmila was featured on the Ted Podcast “Fixable” by Anne Morriss and Francis Frei[14]. Fixable has become one of my favorite go-to podcasts. Apart from their exception podcast on fixing work issues Anne and Francis have published “Move Fast and Fix Things”[15] which incorporates much of the advice here at the executive, primarily the communicating and trust building aspects.

That about wraps up the updates on burnout from 2024. There is a growing acknowledgement of burnout as a serious issue, with neurodivergent people being more heavily impacted. Workplace reform, including hybrid and remote work, and clearer boundaries are beneficial for all, with a growing range of mainstream professional and individual resources being created to increase support.

If you feel that you need support please see your General Practitioner or Mental Health Professional where you can, and trusted friend or family. It’s important to be proactive about your emotional wellbeing, speaking up about mental health is a great start. If you want to start at home, then the Black Dog Institute has a self care plan[18] as starting point to manage symptoms of burnout by helping you evaluate your coping skills, identify your daily self-care needs and replace negative coping strategies with positive alternatives. 

Hope you had a wonderful Holiday season, with all the types of rest you need.  Looking forward to pushing boundaries in 2025.

Reposted from Neurodiversity and Mental Wellness Tessitura Community - Shelly Binkley & Heath Wilder

References

* When I’ve mentioned neurodivergent burnout, I’m including many neurotypes and the variety of challenges non-exhaustively. Speaking with people throughout the neurodivergent community, I’ve found a similarity of experience and overlap in management that warrants the title. There are of course more specific focus areas which are named as such. The previous post highlights burnout and fatigue with more specificity.

  1. Shelly Binkley & Heath Wilder (May, 2023) Burnout through many lenses – Neurodiversity and Mental Wellness Tessitura Community (reprinted)
  2. Dora M. Raymaker, Alan R. Teo, Nicole A. Steckler, Brandy Lentz, Mirah Scharer, Austin Delos Santos, Steven K. Kapp, Morrigan Hunter, Andee Joyce, and Christina Nicolaidis (Jun 2020) “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout Autism in Adulthood
  3. Robert Schmus (Aug, 2024) Autistic Burnout The Art of Autism 
  4. Dr Devon Price (Oct, 2024) You Might Not Recover from Burnout. Ever. What grows from the ashes of your old life? Dr Devon Price Substack
  5. Rachel Worsley & Kate Hardiman (Dec, 2024) What are your recommendations for managing energy levels and burnout in teams/environments that demand high performance? Neurodiversity Media and Unify360
  6. Rachel Worsley & Kate Hardiman (Dec, 2024) How to Fix Neurodivergent Burnout At This Time of Year Neurodiversity Media and Unify360
  7. Intersectional Advisory Committee (IAC) (Mar, 2024) Welcome Pack Reframing Autism
  8. (Nov, 2024) ASAN Self Advocacy Toolkit ASAN AUNZ
  9. (Dec, 2024) Autistic Advocacy Resources AutisticAdvocacy.org
  10. Jessica McCabe (Jul 2024) How to ADHD: An Insider’s Guide to Working with Your Brain howtoadhdbook.com
  11. Ludmila Praslova (Oct, 2024) the Canary Code the.canarycode.com
  12. Shelly Binkley & Heath Wilder (Dec, 2023) 7 Types of Rest Neurodiversity and Mental Wellness Tessitura Community
  13. Kristen Hovet (Aug, 2024) Autistic Burnout, Shutdown, and Social Hangover – The Other Autism
  14. Francis Frei & Anne Morriss (Nov, 2024) The power of neurodivergence in the workplace (w/ Master Fixer Ludmila Praslova) – Fixable
  15. Francis Frei & Anne Morriss (Oct, 2023) Move Fast and Fix Things – Harvard Business Review
  16. Autistic Burnout – Resistance and Recovery Community Webinar – Professional Webinar (2024) Reframing Autism
  17. Why Burnout Is an Inclusion Issue (Nov, 2024) Diversity Council Australia
  18. How to use self-care planning to improve your emotional wellbeing, even when you don’t think you need it (May 2023) Black Dog Institute

Neuroinclusive Education

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I was speaking with my bestie, their 3yo is pulling out of dance class because they are finding it hard (the 3yo not … you get it). It’s not having your parent there, as much as being told what to do by people you don’t know, in ways you struggle to understand, and with little adjustment or accommodation.

See our protagonist is undoubtedly neurodivergent, and being neurodivergent is frequently tricky, because whilst you are growing up you are learning in mixed groups, with a curriculum delivered in a way to have the best results – or to achieve the best learning amongst the most students. When you have specific needs and make up 2% of the population, it’s on you to do the extra work. When you succeed in creating an adaptation of the system, that creativity is not valued, celebrated or even noticed. Often that’s because the trainer does not understand that you needed it, or may look at it as procrastination. What is celebrated is the end result of your efforts, and in your case the effort was split between creating a new system you could work with, before you moved onto the standard learning. Consequently when you realise that the standard measuring system doesn’t measure you you stop caring in the measuring. So being a neurodivergent kid is tricky. Tricky to the point of overwhelming; emotionally, intellectually and physically. Or at least that has been my experience.

To the first point I hated being without my parent. Usually my mum but back then my dad and I were close. It was bringing something/one you knew you could predict and was an an option if you needed to get you out of that situation. That sounds cold, I truly loved my parents regardless of the difficulties, and perhaps because of them. But in those early decades, I found going it alone very hard. You learn little-by-little your own capabilities, but having that base of familiarity is exceptionally important as an autistic kid. I’d never complain, which was apparently a feature. I could get very quiet and focussed or very still. Inside I was vibrating at hyper-speed like the flash travelling through a wall. Some of my earliest memories are of negotiating my own executive dysfunction, making up rituals where “by the end of folding this leaf I would go and see if I could join in playing soccer”.

It’s especially hard in those early years when you are starting to encounter the neurotypical world. None of it make sense. I felt that I was in a daily escape room – having to navigate situations where at any time someone would change from happy to see me to outraged that I’d transgressed some rule. And it only became apparent that I’d transgressed a rule later on. Initially it seemed random, and the emotion and whatever I did was unrelated. I started learning about social rules from then on, and interpreting what people were saying into understanding what they wanted. Now <cough cough> years on I’ve come a few laps in the understanding that often the response is random, and is a complex web of other peoples stuff that may intersect with what I am doing and what they are saying in small or large ways. But to a 3yo doing ballet that is way outside what you’ve signed up for.

So what is the way to teach neurodivergent kids dance? We’ve rallied and campaigned against Applied Behaviour Analysis, forcing the normalisation of children, and imposing a dog training reward model. We also know that “one size fits all” fit the majority not a minority. I’m certainly not an expert, but I do know people who are.

It strikes me that I know internationally renowned leaders in dance and dance education, trained in neurodivergent accommodation and neurodivergent themselves. And what they teach seems radically human centered from a place of growth and safety. They teach from a place of support and the tools to support yourself. And that component of the training is egalitarian and largely unmeasured. Because what are you measuring and why?

Seems like a good place to start.

On Rilke

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_______

To someone that likes to pretend they know everything,
You have a remarkable ability
         to prove I know nothing
_______

BURNOUT Follow Up #2: Dyslexia and Fatigue

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I have been meaning to follow up with some more resources regarding Burnout in the Neurodivergent Community. It makes sense that the challenges of working in a high pressure environment, especially one that is nonoptimal for your skills, will add stress. Of course that means that burnout can and does occur in all neurotypes.  

A Succeed-with-Dyslexia (SWD) blog post[1] from last year is a great read about burnout for everyone. It summarises the very important point

What matters is recognising [burnout], and reaching out, even if it feels trivial or embarrassing at first – it isn’t, but sometimes that hurdle is one of the largest for people. 

Hayley M Butcher, in her blog  “Discussing the Dyslexic Brain” [2] lays out the reasons for fatigue being so common in the dyslexic community. Her summary in typically clear, dyslexic style:

A collage of factors, including tackling difficult and complex tasks, spending time checking and re-checking for errors, battling visual stressors and coping with associated stress can be a real recipe for fatigue amongst the dyslexic community.

It is also a fantastic literature review of contemporary research and support, with great references and advice:

Setting achievable goals, breaking tasks into manageable chunks, taking regular breaks, accessing reasonable adjustments and seeking the expertise of educational professionals when needed can all be great ways to assist the dyslexic population. In addition, remaining supportive and encouraging, yet also understanding of your dyslexic child, student or significant other (or even towards yourself) is absolutely crucial. 

Well worth a read

[1] Dyslexia and Me: Dyslexia and Burrnout, June 2022

[2] Discusing the Dyslexic Brain, Oct 2020

Mental Health Monday: Burnout through many lenses

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(This piece of writing was created by my incredible friend Shelly and myself for our Neurodiversity and Wellness, Arts and Culture community that we chair)

You might hear the term “Burnout” talked about a lot and maybe you’ve felt that way yourself. 

But what is burnout?

How does burnout differ between different communities?

And what can you do about it for your co-workers, friends and yourself?

Defining Burnout

The World Health Organisation (WHO) points out that whilst burn-out is included in the 11th Revision of the International Classification of Diseases (ICD-11) as an occupational phenomenon, it is not classified as a medical condition.[1] 

Burn-out is defined in ICD-11 as:

“a syndrome conceptualised as resulting from chronic workplace stress that has not been successfully managed. It is characterised by three dimensions:

•  feelings of energy depletion or exhaustion;
•  increased mental distance from one’s job, or feelings of negativism or cynicism related to one’s job; and
•  reduced professional efficacy.”

WORLD HEALTH ORGANIZATION (MAY, 2019)

However, as the boundaries between work and home have blurred throughout the covid years, the occupational distinction has also become less fitting.  Evidence shows that burnout makes no distinction between paid or unpaid work and people undertaking unpaid home or care duties can also be impacted[2]. 

The Black Dog Institute and the UNSW School of Psychiatry[2a] have carried out studies into factors that commonly concur with burnout, including:

  • Anxiety/stress
  • Depression and low mood
  • Irritability and anger
  • Sleep disturbances
  • Lack of motivation or passion
  • Lack of concentration, memory loss or brain fog
  • Withdrawal from others
  • Physical symptoms such as aches, headaches, nausea and low libido
  • Emotional fragility

It raises the chicken v egg question on whether these factors are a cause of or caused by burnout, or whether they are all a symptom of an underlying issue. The same researchers are also undertaking a followup study to further investigate the features of burnout and its relationship with depression.

Neurodivergent Burnout

In the neurodivergent communities, conversations about burnout are quite common.  In fact many neurodivergent people come to uncover their uniqueness due to the burnout of trying to fly under the radar.  The challenges of living and working in a society not designed for us can mean frequent overload that can push us into meltdown, shutdown, and burnout.  Also life-changes can exacerbate challenges, for example transitioning from school to work, experiencing a mental health crisis, or the death of someone close[13].  Stigma can make prevention and recovery even harder.  

So how does neurodivergent burnout differ from the WHO defined burnout? 

A notable difference is in the causes of burnout [6]. Some of factors that lead to burnout for ND folk are:

  • Repeated sensory overload
  • Long term masking
  • Having social/sensory needs minimised by others due to appearing “fine” (i.e. “successful” masking)⁠
  • Not having access to the appropriate level of supports & accommodations ⁠
  • Difficult or unreachable expectations from family, school, work, or society
  • Executive Functioning fatigue following a number of stressors or transitions
  • When the overall load exceeds abilities + supports = burnout

But impacts of burnout can also present differently, including [7]:

  • Loss of skills
  • Loss of interest in dedicated interest areas
  • Emotional regulation issues
  • Added anxiety and depression

A study by Dr Dora Rainmaker at Portland State University[11], involved interviews with autistic adults. Whilst her studies have been in the autistic population, the sentiment aligns with other neurodivergent communities. Findings included:

 “… struggling with independent living, loss of self-belief, and being frightened that the loss of skills from the autistic burnout might be permanent.”

Dr. Dora Rainmaker

The results also pointed to a “lack of empathy from neurotypical people, who had difficulty understanding or relating to the autistic person’s experiences.”

What can we do about it?

Policy

On a policy level, it may be good to know that groups such as the Black Dog Institute are campaigning for workplace reform through methods such as their White Paper[9]. Actions your organisation can take include:

  1. Evidence-based training for managers regarding the resources available and actions they can take to recognise and respond to mental health risk factors in the workplace.
  2. Building mentally healthy workplaces.
  3. Taking immediate action on bullying, sexual harassment and assault.

Self-care

The most important way to recover is prioritising self-care as a protective measure against burnout and other mental health issues.  However self-care is often the first thing that gets sacrificed to work demands and stress.

So what is self care? 

“Self-care refers to the activities and practices that we deliberately choose to engage in on a regular basis to maintain and enhance our health and wellbeing.  Regular practices may include exercise, reading, meditation, disconnecting from technology, or talking with a friend or family member.”[10]

“When you take time for yourself to rest, reset, and rejuvenate you will actually have more energy to meet the demands of daily life as well as reduce or avoid the symptoms of mental ill-health.” 

Dr Jan Orman

But what does Neurodivergent self-care look like?

For Neurodivergent folk there are a few ways to recover in addition (or instead of) neurotypical burnout recovery.  In fact it’s worth noting that many neurotypical recovery techniques and interventions can be ineffective or even more overwhelming. Social support can add to overload, and even mindfulness may need a special touch as described by Sue Hutton[14].  

Neurodivergent affirming recovery methods can include [8, 11, 12]:

  • Deliberate reining back of tasks and responsibilities
  • Prioritising rest, recognising the necessity of healing, and equitable productivity
  • Careful unmasking where appropriate
  • Slow refocus on areas of interest and energy giving environments like nature
  • Outsource executive functioning tasks
  • Attending to sensory needs

Self-care Strategy

Prevention of burnout comes with increased awareness of needs and accommodation for those by workplaces, family and community.  Clear boundaries and formal supports are also key to keeping the overload at bay.

The Black Dog institute has a comprehensive self care template designed so that you can craft a personal self-care strategy that works for you. It will guide you through the 4 steps of self-care planning:

Step 1 | Evaluate your coping skills

Step 2 | Identify your daily self-care needs

Step 3 | Reflect. Examine. Replace.

Step 4 | Create your self-care plan

You can download a copy HERE [10]

Follow up

If you are feeling burnout, run down or depression it’s worth talking to a mental health professional starting with your doctor.  But if you are feeling that that’s a big first step try reaching out to the people around you and in your communities. Talking can help and it can make that journey more manageable by taking it one step at a time.

Go well!

PS– what to learn more? Check out this upcoming workshop on Autistic Burnout:

__

Resources

  1. Burn-out an “occupational phenomenon”: International Classification of Diseases World Health Organization (May, 2019)
  2. Experiencing burnout? Here’s what to do about it BlackDog Institute (Feb, 2023)
    1. Burnout diagnosis one step closer with new clinical checklist and predictor of which personalities are most at risk BlackDog Institute (Jul, 2021)
  3. The Cost of Workplace Stress in Australia Medibank (Aug, 2008)
  4. Importance of self-care planning | Black Dog Institute 
  5. Autistic burnout, explained https://doi.org/10.53053/BPZP2355 Spectrum News (Mar, 2020)
  6. Autism and ADHD Burnout Recovery — Insights of a Neurodivergent Clinician Dr Neff, Neurodivergent insights (Jun, 2022)
  7. “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout | Autism in Adulthood  (Raymaker et al., 2021)
  8. Navigating Autistic Burnout: Self-care strategies to recover and recalibrate – Reframing Autism Justine Field, Reframing Autism (Jan, 2023)
  9. Modern work: how changes to the way we work are impacting Australians’ mental health Black Dog Institute
  10. Importance of self-care planning Black Dog Institute
  11. CharWrites info graphics on Burnout recovery Char (Mar, 2023)
  12. Neurodivergent Dawn on ND Burnout and Recovery Neurodivergent Dawn (Jun, 2022)
  13. Understanding autistic burnout Dora Raymaker, National Autistic Society (Mar, 2022)
  14. Learning to Celebrate Neurodiversity in Mindfulness Sue Hutton (Oct, 2020)

Autism Tests and the Arrogance of “Normality”

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There are a bunch of fun and interesting tests that do the rounds of the neurodivergent and autistic communities every now and again. Some draw from rich experience and colour of the community, whilst others are built from the doctrine of Asperger* & Lovaas* treating us as if “they are not people in the psychological sense”. Yes ND and autistic people are horrendously marginalised still, so when doing any of these tests it’s important to remember that it’s not a Cosmo quiz and experiences may vary.

(Before I get too soap-boxy) the folks over at Embrace Autism have collected a bunch of them and give each a description, a discussion on merits and the evolution of the test, notes on scoring and provide a comments page – always interesting. I’m looking for some fun ones for a meetup and this is a great place to go. I did however get sucked into the tractor beam of the RMET and I unpack my opinion below.

Reading the Mind in the Eyes test

Yep 10 in 16 minutes. RMET is so arbitrary and forced. There are recent studies of peoples thoughts of what they looked like when frightened compared to what they actually looked like and they are nothing alike.

Like the TASIT, RMET is a performative model of what neurotypical society agree are the proxies for emotion in the same way that sitcoms and soap opera’s use codified behaviour to indicate emotion. They are not testing reactive emotion displays but artistic expression of emotion. I was an actor and director for 25 years and am an executive on Australia’s largest theatre company. I know some of the actors in the TASIT test and that is acting – not real life. Say what you will about “method” acting or portraiture, they are devices to tell clear narrative. Life is not. I spent decades learning to act professionally neurotypical because (as Damian Milton proposes) NTs were equally bad at recognising my emotions. With context and knowledge I’m quite good at determining a persons mood and situation. But more to the point of empathy I act on it.

What is actually interesting is that the times I’ve met up with new autistic friends they are much more attuned to my emotional state with a much more limited exposure. This has always felt like we are naturally attuned to one another. That’s a metaphor rather than a factual statement but still often it’s with other ND and autistic folk that I get close to a feeling of home.

TASIT and RMET basically boil down to a culturally specific ink blot test, or a test to see if you have the cultural secret to enter a club.

* the former a Nazi scientist who experimented on children and the latter one of the creators of gay conversion therapy and the founder of Applied Behavioural Analysis – still the western standard therapy for autistic children. Summarised here

How do we make work sustainable?

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I came across Katherine May’s new blog post at 2 am on a Sunday trying to finish up work. As my life is more irony than substance these days I think it’s worth putting up.

It’s an important call to action. How do we make our work more sustainable? There are a couple of points in there for me

  • How do I automate manual tasks
  • How do I delegate with the goal of improving the work outcomes and career growth of others
  • How do I set up cross collaborations to distribute the load and remove bottle necks
  • How do we upskill for self-service and empowerment

Sustainability of work is easier to handle (and harder to refute) if it becomes about raising others up. Whilst I might be “essential” if I’m the sole knowledge holder I am also limiting my ability to take leave, adding risk to the risk matrix, and stopping others from understanding my needs. And sharing information can lead to great collaborations.

So perhaps there is something in that. Collaboration and advocacy can be used to create a healthy work structure.

One last thing though is the Black Dog Institutes self-care template. It’s a guide more than a prescribed set of marketing fluff, so common with these themes. You set the tasks that work for you at a rate you can take on. Well worth a look.

How to use self-care planning to improve your emotional wellbeing, even when you don’t think you need it