I’ve been an actor for more than 20 years, and analysed data for more than 30. I trained at the esteemed University of Western Sydney Nepean in physical theatre and at the University of Sydney where I studied neurophysiology. I’ve also studied a wide range of acting styles and techniques, and have skills raging through voice acting, physical and stand-up comedy and stage fighting making me a versatile actor with an eclectic career.
Sydney based I have lectured and performed around the world. For more info check out the about me page above. For examples of my work have a look through the video and photo pages. For a bio and to get in touch see my contacts page.
This blog post arrived from Hero’s Journal (the product of whom, I love) about distraction. It seemed to infer that distraction was the result of anxiety. It’s not that I’ve not heard that before (it’s quite a common trope in the “How to destress” pop-culture circle), but perhaps it struck me as odd here because the it was making distraction the subject rather than anxiety. The other reason it raised my attention’s right eyebrow was because I was talking (aka info-dumping) with a work pal this morning about the difference between working in the office and working at home.
Anxiety is not the primary reason for me to be distracted. IN FACT anxiety is a great driver of focus. In the office I tend to hyper-focus a lot because the excessive noise and human electricity-pollution creates such a atmosphere of stimulus stress that I usually have little choice but to burrow into work. Similarly task urgency makes me push into hyper-focus easily.
Additionally I’m more inclined to daydream when I’m in my home office working with much lower distractions and sensory pain.
Look, I’m no stranger to Yerkes-Dodson curve. I know that pressure leads to performance to a point. BUT I’m much more likely to hyper-focus with higher stress even when that stress is damaging.
It’s an ADHD thing (I’m pretty sure). I get distracted at low stress points and highly attentive at high stress points (until I meltdown). Heck, I went into business mode for a week when I arrived in Cairo the morning of Arab-spring when liaising with Australian and Canadian Governments (and the beautiful people of Egypt) saved our lives.
There’s also the judgment call on what we call performance. Free associating is great innovation work. It’s essential to me making innovative ground on projects.
So “No.” Destressing is not a solution to my distractedness. In many cases it’s the exact opposite.
On the other hand do check out the Hero’s Journal. I love mine and I’m using it to my personal mental health project. More on that soon
So as I’m on holiday at the moment and powering through my holiday reading … and listening as I’ve taken to long walks accompanied by podcasts. I’d Just finished Sarah Kurchak’s hilarious memoir (I Overcame My Autism and All I Got Was This Lousy Anxiety Disorder) that I’d been trying to finish all year. It was a book that I’ll read when I felt my sense of self starting to become insubstantial, like Marty McFly vanishing because his past was starting to become erased. Whenever I felt so apart from the world around me I’d read some of that book and know that I wasn’t the alone (and it was ok to laugh).
Since then I’ve been searching for my next literary adventure, which I found in …
Katherine May’s “Wintering Sessions” Podcast
So full disclosure – I love Katherine May’s stuff. She is an excellent writer that I discovered through her memoir “The Electricity of Every Living Thing.” In the book Katherine talks about the year that she took on the 630 km South West Coast Path walk to try and understand why her life seemed to be so overwhelming and isolating, with the realisation that she is autistic. As diverse as the spectrum is there are things that we almost all agree on, and her fitting together that puzzle of a lifetime of experiences during her years journey was something that very familiar.
Her second book is “Wintering.” Wintering (as a verb) is described as the power of rest and retreat in difficult times. It’s a very apt metaphor for pulling back and healing in response to those times when trauma comes into our life. But rather than a dormant time Katherine talks about how actively nurturing, necessary and powerful that time is. It isn’t a maudlin or depressing read at all. It’s a beautiful exploration of growth and opportunity.
And from that book she has curated an incredible series of discussions in podcast form that I urge anyone to listen to. In the Wintering Sessions Katherine interviews writers and artists who have weathered their own difficult times and have been transformed. The format is wonderfully personal and informal, making it very easy to connect to the people at the heart of their own story. I picked the podcast up in the Divergent Conversations Instagram series starting with her conversation with multiform artist Sonia Boué. The incredibly open and easy conversation between two neurodivergent artists was incredibly refreshing.
So that’s my reading list for this end of 2021; both healing and inclusive. If you need new podcast (or book) have a crack.
I’m interested in what you might be consuming during the holiday season.
The holidays can be rough for everyone. And for us Neuro Distinct folx it can be difficult to explain how differently tough they can be. Routine changes, flashing lights and loud music, social pressures, crowds and fine motor control puzzles can throw a spanner into your executive function machine, at the very least.
For me it is an exorbitantly overwhelming time that I struggle to keep just shy of whelmed. But however you want to celebrate – small, big, quiet or noisy – your way is valid.
That might mean:
Taking time out from a big social scene to lie on your bed with NC headphones on and recuperate (ie: get some spoons back)
Blocking out “Do Not Disturb” time to revise your plan for the next few days
Opening gifts the way you want to (for me it’s one piece of tape at a time)
Politely stating your boundaries
Getting a buddy to help you out when it gets too much (or too little)
How to ADHD has really been on the money lately with incredible work tips that have really sung to me.
Taking on too much work.
Ah YES! Over committing is a huge challenge for my life for a number of reasons. Living a life in line with your values seemed a bit like the title of a pop psych book from the 90s (and personal baggage for another time). However stepping back for a minute and looking at what life values I need to prioritise was really great. Instead of fitting in one more request for other people, I really need to hit pause and take time out for myself, and the things on the top of my value list that I’m ignoring. Things like personal health and relationships.
One way that I’m looking at that at the moment is by monitoring my emotional health using the Daylio app. It also tracks potentially related stuff like healthy eating, exercise and personal timeouts. Because the best way to get an over committed data junkie to take time out is with the lure of more data.
The other thing is Trello. I talk about this a lot. I have a personal Kanban for projects that I need to achieve and hard and soft deadlines for that. For other work requests I’m building in two times a day of 30 minutes where I clear &/or prioritise those requests. Of course I can’t ignore everyone (as much as that sounds like heaven) but it does mean that I can block out times to focus and on what task knowing that the alerts will get dealt with in their own space.
That’s a great segue into the other great vlog – Monotasking. It’s a great reminder about the illusion that multitasking is somehow good. I’ve known for a long time that my brand autistic neurotype deals with interruptions by crashing my brains hard drive. It’s no secret that changing my focus requires a good 5-10 seconds to shelve what I was doing and making the turn. Even then it takes a bunch of effort to do. But split focus is also a pain for other neurotypes.
Monotasking is a great way to do lots well. Blocking out slabs of time to get things done. It’s also good to block in slabs of time to do social or answer people’s questions. It’s an idea I want to try out more and see how it goes.
Here are the two quick YouTube eps that I’m talking about. Love to hear the ways you are hacking your work for your brain.
I get the message. I don’t belong. I know that people would be upset to know that their words say that, but it’s there.
A work conversation recently to a group of colleagues was along the lines of, “it’s so much better for you to go into the office and have those organic conversations; to be able to catch someone in the corridor and get an answer to a question. We were all in yesterday and it was so easy and we got so much cleared.”
I know what they mean and I know that they mean well, but what they are actively telling me (and people like me) is that your authentic self is not welcome and your personal health is not important. ie: you don’t belong.
That’s a pretty strong statement for me to make. But it’s necessary because it’s in direct contravention of disability equity and inclusion goals. The act of having to prove fundamental truths about ones experience, and having to prove the barriers for disability is part of the problem. Milton’s double empathy problem1 states “when people with very different experiences of the world interact with one another, they will struggle to empathise with each other.” The issue is the lack of equality in the relationship creates a paradigm that, as the autistic experience is not able to be felt by others, it is frequently questioned, dismissed or disbelieved, despite evidence to the contrary.
Conversely we understand and accept the needs for a large portion of neurotypical & allistic society to need spontaneous interaction to function at their peak. If you need that to be at your best we support it (if it could not be at our expense that would be great too). Many of the needs of the widest part of the neurotypical (and frequently white, cis-male, heteronormative etc) community are baked into the work culture. But often that is at the expense of the minority.
Too many times in the past when I’ve come up against group pep talks (or group reprimand) I’ve approached the speaker to clarify what I’m doing wrong or explain the difficulty in doing what was asked. Every time I’ve been told “Oh I wasn’t talking to you”. What that DOES tell me is that I’m rarely, if ever, talked to. Like the opening speech. Hence my problem. What has been said in those moments are a general statement establishing general expectations, ie: the status quo. I exist outside of that ie: I am siloed.
So why is the office environment a problem?
Inherently it’s not, but a couple of issues are2:
Autistic folks keep a lot of information in conscious memory. On top of that we are asked to performatively mask in order to fit into the work culture taking up additional resources. Screening out background noise, smells and UV lighting takes even more resources. As a consequence there is not a lot of conscious processing left to focus on what we need to do. Therefore social interruptions and “can I just grab you a moment” can be crippling.
Masking leads to suicidality and burnout3. Reason being is that if you succeed then you have just proved that a persona is more valid than your authentic self. If you fail then you let slip your authentic self to your detriment. Additionally the effort to maintain that persona takes energy and focus that you need for your basic work and self.
Multiple conversations at the same time like in a lunch room, or corridor, require screening out of background noise and stimulus. That takes effort. That’s not even starting on eye contact and body language.
Not having time to prepare information for a conversation means that a lot of processing power will have to go into dragging that information into conscious memory, and shelving the task that you were on.
Often the spontaneous conversation will require an answer that hasn’t been scripted. Yet again this increases the amount of conscious thinking to
a) parse the information and formulate a response,
b) judge the position and personal status of the one you are talking to in case they need a specific tone or level of detail,
c) edit that response for generally socially acceptable norms,
d) keep looking for facial and/or body language cues from the person you are talking too. NB/ I have to do this in conscious memory.
We are expected to do all the above AND not rock the boat.
By existing outside of that I am excluded. So isn’t existing outside of the rules a positive accommodation? No. I’ll explain.
To fit into the work environment I’ll need to subject myself to exhaustion and pain OR not be in the room where decisions are being made. Not being in the place where the organic conversations were being had means being excluded from the decision making process (bad for me) and having ones knowledge, skill and experience removed from the decision (bad for the business).
Because I am rarely in the room when these decisions are being made I am frequently coming up against last minute deadlines. These scrambling for deadlines and approvals further impact mental health as well as business outcomes and can lead me to working 12+ hour days.
People don’t want to deal with disability and so they work around it and create a silo. This leads to more forceful insistence and begging, which in turn leads to more alienation.
So there’s got to be a solution right?
Sure, I’m not going to just complain and run (that’s no good for my own mental health at the very least). The solution is to be prepared. Set meetings with an agenda (or create them in the moment) and write stuff down. Designate someone to take minutes. Follow up and inform. Plan. Respect boundaries.
But there are other things as well. Celebrating team wins need to be done in a way that everyone can participate in. Staff x-mas parties are excluding, and if I attend I do so at my own health cost. Team building activities are the same.
So keep in mind that (despite what pop-organisational psychology might suggest) we are not all the same. You have a diversity of colleagues and reports. Treat them with equity (not just equality) and find the way to come together. They alternative is loss of talent and headaches – but also depression and burnout.
It’s a lovely sunny winter weekend afternoon over here in Sydney lockdown. I’ve just made a batch of spinach and cheese arancini and am contemplating the medium future in the way that you do when you are observing time by the rate that a cat has to shift its position on the bed to remain sleeping in the sun.
TLCC2021 stirred up a few thoughts for me. One was inspired from the many incredible sessions that I went to from the Tessitura Enterprise team (whom I always imagine as being Starfleet Officers). I succumbed to their insistence that I finally read CRM at the Speed of Light, and not leave it as a shelved trophy for my Zoom background.
The other was this blog post on the ADHD tax, that I’d been thinking about for some time. If you are not familiar there has been a term floating around the online community about the concept of this tax, the cost to ADHDers for replacing things that have gotten lost, credit score hits from forgetting bills, late fees for things that have not been returned on time, impulse buys for things that we honestly don’t need, etc. It is one of those things that ADHDers will sigh and agree, and a recent Reddit post with almost 9000 upvotes and 700 replies underscores that sentiment.
Back to reading Paul Greenberg, I was at around chapter 2 on collaborating with customers when those two thoughts crashed together. At TLCC I was banging on about making equity for neurodivergent folks in the workplace. This is incredibly important for belonging and inclusion for our colleagues. It is a simple step to widen that thought process to our ND customers.
I’m going to quote Starfleet’s quote of Paul Greenberg definition of CRM
“CRM is a philosophy and a business strategy supported by a system and a technology designed to improve human interactions in a business environment”
Paul Greenberg, CRM Magazine, October 2003
It’s that final bit that really is the kicker for me. In CRM at the Speed of Light 4th ed Paul goes on to define Social CRM as
“Social CRM is a philosophy and a business strategy, supported by a technology platform, business rules, processes, and social characteristics, designed to engage the customer in a collaborative conversation in order to provide mutually beneficial value in a trusted and transparent business environment.“
Paul Greenberg, CRM at the Speed of Light
The collaborative conversation in a trusted and transparent environment is important because, as we continue to see, we need to walk the values we talk.
So here is my pitch. In the interest of a modern and inclusive CRM (business and customer) relationship, how are arts orgs helping our customers with the ADHD tax? How are we helping patrons remember shows with pre show emails? How are we giving our customers clear and actionable ways of exchanging without judgement? What are our rules with regards to a cooling off period on impulse buys? A friend’s (Martin Keen) recent forum post on adding an iCal element to booking confirmations was a great thinking point on inclusive design and being broad in our DEAI goals.
There are a number of business rules, processes and technologies that we can use to engage our customers in ways that make our relationship stronger. I’m excited to look at my own organisation’s accessibility from increasingly broad perspectives.
Another conference over. Sad but true. It was about 50 hours of video and face to face over the week. As with conferences it was hyper focus for the week followed by info digestion time. Well meaning folk talk about looking after yourself, only doing x hours, regular breaks etc. and a lot of that is right. I would sleep in 1-3 hour shifts but my waking focus was all on conference learning and sharing. I’ve tried other ways of being but it’s not healthy to be honest. A little thing that allistics don’t really understand is that it’s not the hours that cause stress but the human interaction and switching between tasks that really get us. Suffice to say that it was a great conference with a lot achieved.
As always I went to quite a few Customer Relationship Management lectures and picked up a great suite of recommends – some that I’ve been wanting to read for a long time like “Nudge” (Thaler and Sunstein), “Decisive” (Chip and Dan Heath), “CRM at the Speed of Light” (Paul Greenberg) … and the huge favourite “Thinking Fast and Slow” by Nobel prize-winner Daniel Kahneman.
So I started by post conference reading on Daniel Kahneman. This book has come up in many conversations and readings over the years and is built on 40 years of research. Systems processing in psychology breaks thinking into 2 processes
System 1 “is the brain’s fast, automatic, intuitive approach”. System 1 activity includes the innate mental activities that we are born with, such as a preparedness to perceive the world around us, recognise objects, orient attention, avoid losses – and fear spiders! Other mental activities become fast and automatic through prolonged practice.
Of course I’ve come across intuition and heuristics before. I was a psych major and spent untold hours as an acting student at university in Sandy Meisner “magic circles” acting impulsively. These things were either ideological (the former) or a bit of a pretence (the latter). I was always told that I was too ‘much in my head’ as an actor and not impulsive and ‘gut’ enough. I got better at faking it OR rehearsing so much at home that the thinking became unrecognisably fast, like remembering lines by reading them off the script in my mind. I’d argue that people were just ignorant of the calculations that they were doing in social situations and the amount of relationship math that was going on to interact with others were just the thing that they liked to call “intuition.”
Then I discovered I was autistic.
Well it was a long time coming to be honest. I was many times called autistic or aspie (amongst other things) when I was overloaded enough that the mask dropped. I rolled with it and tried harder. and harder. and … well it got to a point when I was working with others a lot more than usual in strategy and inter-team negotiation. And when my boundaries were crossed one to many times I did what comes naturally – I researched – and discovered my autistic self. Meeting more and more autists I realised that I was not just hard work, a broken person, or less – but a fully functioning autistic adult. That’s a conversation for another time.
Back to “Thinking Fast and Slow” by Daniel Kahneman I was reading about word association games and impulsive thinking and exactly how (neurotypicals) think about these things. Having thoughts that just into their mind when another is said as if by magic. You see this doesn’t happen for me. When word associating with my wife and she says yoghurt I think hard and come up with the yogurt that I just put into the fridge and make a conscious choice that I’d go with blue like the navy blue sticker that was on the carton. Or if she said smile I would conjure the list of emoticons and go to the next one in the list as a conscious choice. Impulsive thoughts to me are just cognition at speed.
I’ve posited this to my autistic psychologist friends and looking forward to what they have to say. From the recent feedback they seem to agree. We don’t do System 1 thinking. We don’t attribute malice to a big triangle that is following a smaller one (you neurotypicals are weird), we think about it and respond ‘appropriately’ (I realise this is laughingly subjective). It’s the same reason I believe that we autists have a large disregard for gender stereotypes with our high gender queer constituency and a high sense of justice in our shirking of nonsensical social convention. Of course I’m massively biased but I know that because I don’t do System 1 thinking. I think that we do an incredible processing job emulating heuristic thinking and doing so wonderfully well. But I’m sure that my thoughts on this will evolve when I talk to our incredible community further who will enlighten me more.
Your friendly neighbourhood autistic here. It’s autism awareness/acceptance/appreciation month so I thought I’d share a couple of great resources for helping yourself and other colleagues interface better, smoother happier, etc. It’s more specifically Autism Awareness Day on the 2nd April but I was busy with my ADHD taking me in many other directions so … here we are. And I’m going to just assume that you are aware and accepting of us so let’s move onto appreciation.
Of course it’s always good to start with “If you’ve met one person with autism, you’ve met one person with autism.” We’re all different and mileage may vary but these below are a good starting point.
Hunter Hansen is a great advocate for autistic professionals and he sounds like Owen Wilson so what’s not to like! All his content is great but especially relevant are the youtube vids
Ashlea McKay. Now I’m going to riff of the last Hunter video as a segway into Ashlea’s great advice. But first a bit about Ashlea. You’ve heard me mention her in a previous post about using a codeword (banana) to indicate informations processing time in a meeting. Well she regularly posts tips and thoughts about autism at work in her Quirk Monster Bites on LinkedIn. The one that jumps out at me everytime is about Open Plan offices. Yeah we all hate them. The ‘pop-in‘, the ‘have you got a second‘, the ‘I’ll just save you form overwork with my mew tiktok dance‘ – yeah it’s exhausting to us. You can read her take here
Dr Nancy Doyle is neurodivergent and her Genius Within (based in the UK) has a lot of great information about all neurodiversity and advocacy in the workplace. Her articles on Forbes and posts on social are also worth a read. Information neurodiversity is here
Neurodiversity Media by Rachel Worsley is the last trip on our tour and definitely not the least. There are an incredible number of free resources for autistic and ND workers and managers including case studies and advice. They also have Toolkits to help addressing issues and getting every one on the same equitable footing.
Thanks for reading my little autism appreciation and awareness post. Remember to read autistic/bipoc/trans/disabled voices and listen to what they have to say. Happy holiday if you are having one, and just general happiness even if you are not.
I work a lot I’m told. I’ve often been accused of having a Martyr Complex and frankly I’m a bit over it. This is something that a lot of neurodivergent and autistic folks I’ve talked to have experienced as well and I think I understand the reasons.
Hyperfocus and special interests are things things that are very central to the way neurodivergent people experience the world. Being focused on a single topic for a long period of time is very common to me. Hyperfocus is a state of being where I can keep attending to a single thing for hours and/or days on end. In the work environment it can mean working on a single problem for a week until I finish it.
Breaking out of that is aggravating to the point of painful. Having that done for me by people banging my desk or waving in front of my face for attention, is frankly aggressive and violent. Saying that “but they were only trying to be friendly” is no more a reasonable statement than it was in the 80s when it was used by grabassing men. It needs to stop. Ashlea McKay has been incredibly eloquent in here covering of that hereand here when she says “Good intentions do not negate not-so-good impacts. They didn’t mean any harm, but they caused harm and that harm has an impact.”
So let’s talk about the Martyr Complex.
I know my limits. I know how much I can take and when to back off, and I build those into what I can take. Most ND adults are the same. We’re good. Believe us. It’s part of negotiating our spoons budget. Hyperfocusing a task for me is a low cost way of working. I can do a lot of focused work and spend less energy. Let’s say it’s like getting on the freeway – I can zoom away without having to stop and start. But everytime someone interrupts to save me from working to hard I have to get off the freeway and stop – and it costs me more energy. And starting again to get back on the freeway is intense. What it effectively does is blow out our energy budget and can lead to burnout, frustration and meltdowns. All because someone wanted to save me from overwork with their funny tiktok dance.
I don’t work for the same reason as neurotypicals. I don’t do it to earn credit or as a badge of station (sorry Vu). I do it because it is a task that has to get done and it holds my interest. Of course I deserve acknowledgement and I deserve to be respected, but that has nothing to do with a Martyr Complex. Mainly because as an outsider to the social hierarchy there is nothing to gain there. The work gets done because the work needs to get done.
Burnout looks like Martyrdom. So ND folk tend to work different hours to NTs. We work when the flow demands it but hyperfocus doesn’t discriminate. When you are on you are ON. We don’t get halfway through a task and go off to work with the team and pick it up later. HOWEVER we also feel an incredible pressure to conform to what the status quo demands. This is called masking, and many an autistic has written articles about the dangers of masking. So you’ll often find us showing up 9-5 (or in my case 7:30-6 to avoid the public transport peak hour sensory overload) and then also working till midnight while I hyperfocus on a task. In fact working outside of the hours of NTs in open office environments is less energy due to the interruptions and sensory overload being absent. All this masking and extended hours lead to burnout.
Autistic superpowers. Ugh this is hard. The toxic positivity and the need for us to prove ourselves leads to overwork. There is a burden for us to appear infallible as a reaction to the tragedy narrative, and it’s a pressure that leads to overwork and burnout. Dr Nancy Doyle puts it better than I here.
Our Spikey Skill Profiles. A friend reminded me that we get resentment often (and sometimes irrelevant praise) for being great at stuff. Riffing off Nancy Doyle again “Whilst everyone has strengths and difficulties, for neurodiverse people the difference between them is significant.” Of course that depends on what you attribute to the normal that you are different from, what does occur is that we can really shine at some things. This is the superpowers at work. In this case though they can create a friction with colleagues when this is looked at as competition. Us being good at something, and sacrificing ourselves to be good at it, can leave them feeling inadequate. They don’t understand we’re not competing with them, we’re competing with ourselves.
Work social functions are a nightmare! I get panic attacks at staff BBQs and social functions. There are too many conversations to focus on, incredible amounts of sensory overload and social games that I’ll never be able to understand. The amount of focus that requires is incredible and I hate it. But not attending these functions can have serious implications on promotion and advancement, as has been documented by the feminist and BIPOC movements in detail. Also not attending tends to attract Martyr labels.
Personal time. What I do with it is my business. What neurodivergent people do with their time is their own business. If I have a special interest in (for example) organising mental health forums for in arts and culture and that gives me energy and satisfaction then that is great. I’ve been told that I’m hopeless and that I can’t help myself [being a work addict] because I follow my special interests rather than “go out with friends”. This is just gaslighting. One might not understand a person’s interests but there is no need to minimise them because one doesn’t get it.
So can we agree not to do this? Using the Martyr slur against neurodivergent and autistic folk is gaslighting. No one is wanting you to feel bad. By and large that wouldn’t even occur to us. The more you can help us shake off masking and stop gaslighting the easier it’ll be for us all.
Special thanks to Carrie Beesley and Mel Granchi for their input
The below is a draft that I wrote in late Jan after a talk I gave. It was a bit raw to post then and I wanted some perspective before I did it. It was a panel discussion I really wanted to do but felt a substantial loss after doing it. I realise that that a lot of the issues were
At the moment I’m bouncing back from a talk I gave yesterday. It’s hard to want to/be responsible for representing everyone at a non inclusive environment at a non inclusive time. The invisible labour is intense,additional managing to juggle so many things at once (just talking about the presentation not nearly including the life/work things happening at that precise moment), and tactically making one’s way through the conversation was additionally a burden. I’m not crashing but I’m steering my plane through shakey weather.
Structure So why was the presentation hard. Note that doing this is a CSI into what happened. Autistics (and indeed all ND folks) work differently than neurotypical folks. Personally it’s been a battle that I’ve had in every workplace that I’ve ever been in. Call a meeting with no agenda and talk about what you have on your plate. What I find in most meetings is that the person with the most status gets the voice. That wasn’t the case with this presentation but we did have very light structure. Walking in there (virtually) was fairly nightmarish. I was hoping that my passion and skills were getting me through the discussion, as I do with most departmental meetings in my life, feeling like a battle. But not knowing what was going to happen and not being able to rely on props/slides/what have you, was difficult.
Accessibility I found that the virtual conference was difficult. The dates were in US format and the times were locked to USA eastern standard time. I don’t know why. It surely didn’t need to be. And as a presenter I had no idea where my room was which added to a sensory burden that I didn’t need.
The platform itself was very bandwidth heavy and as a consequence I needed to log out and lower my screen resolution, change to windowed mode and hope for the best in order to participate. It was geared for business level connection but I was at home at 5am and using my home broadband and had to switch to using my phone wifi as a hotspot.
Maybe the most difficult was something that I thought was going to be a problem. The webcam and reliance on cues. I can usually get by on in person panel discussions by throwing back to a moderator or raising my hand. This was a completely different story. Being so locked into trying to assess nonverbal cues and extraneous information was exhausting and made it very difficult to do. In fact getting back into the lecture after rebooting my connection lead to the issue of alerting the moderator to my presence which is a social game that I don’t know how to play.
And the time. 5:30am. I’ve done a few podcasts and presentations over the past 2 years at these early hours – from midnight to 7am. I’m very eager to lend a hand and soldier on. One of the main reasons though for saying yes to these times, and to be honest saying yes to most things is alexithymia. The way I know how I’m feeling is by observing my own reactions. Most of the time I won’t know that I’m upset, tired or angry unless I analyse my behaviour. So I’m really good for getting up at 3am and doing a lecture – but it will have a negative impact on my executive functioning that will take additional resources to get through. I won’t feel grumpy, and I won’t notice my boundaries being crossed.
I realise that things have to change. The world won’t change and I can’t expect it to instinctively be inclusive as much as I’d like it to. So I need to get better at telegraphing my needs. That’s difficult when I’m working them out still, but in doing that there’s a better chance that the world (or the people in it) will remember the things for the next person.
It’s been tricky this year. I realised how much I gained and lost. This is especially true of the autistic community. Of our little community. Pre and Post the mid year it went from strength to failure. I’m glad that I met so many people that validated my feelings by just existing and feeling so similar to my experience. The change from alienation to representation was like an incredible dream. The loss of people and a community was devastating. And returning to the neurotypical world (in the return to work) has been like smiling my way through loss. I need some time to process that change