I’m proudly autistic. I don’t feel any shame about it. I don’t believe in luck or blessing but those terms are also things I feel with respect to autism. “Lucky” and “blessing” are proud adjacent for me.
“Pride: feeling deep pleasure or satisfaction as a result of one’s own achievements, qualities, or possessions or those of someone with whom one is closely associated.”
I’m proud of my community; the struggles that they face daily and the achievements that they have made in a disabling environment; their self advocacy in the face of being spoken about and over by neurotypical professionals; their ability to create a community and community support through multiple forms of social isolation.
I’m proud of my own achievements despite adversity, victimisation and pressure to conform to a standard that I am not made for.
I’m proud to stand alongside other challenged minorities whether I am a part of them by constituency or as an ally. We are equal in our greatness and worth. We are powerful and strong in our mutual support and understanding.
We all stumble and make mistakes but we move forward. I’m proud of that.
Was having an insta-chat with a parent of an autistic child and special needs educator about learning how to modulate sensory sensitivities and thought I’d share with the group. It was good to have a positive conversation with parent of … There is an understandable rift between parents of autistic kids and autistic adults and there is a lot of reason for this. Hopefully we can bridge a gap though. We are really all fighting for the same equality and a less disabling world leads to whole and empowered autistic adults.
THEM: My question is this: if we don’t teach some desensitization so they can learn self-regulation techniques and maybe be able to tolerate things like stores and doctor’s offices, how do we prepare them to be functioning members of the community and be able to be as independent as they can be based on level of functioning of course? Not trying to offend anyone, especially the autistic community. Just a curious question.😊
ME: As a 49 yo autistic adult trying to hold down a join in an “open office” it’s never easier. I’ve never desensitised. But teaching your little marvel to be brave and strong might be better as its less dismissive. I can take the pain and disorientation but the gas lighting was the thing that made my life hard. Not believing in myself hurt my communication between me and NTs and crushed my spirit (ie depression) 🌻
THEM: That makes sense. My daughter suffers the “she doesn’t look autistic” syndrome and the “well, she can talk so why can’t she just behave” idiocy. There are some things she simply cannot tolerate even after trying and that’s just fine. I like to give her and my students a chance so I can truly see where they are at. This is a great response. Thank you so much for your honesty and kindness. 💜
ME: thank you for being such a wonderful parent and mentor. 😊
Ok I’m angry. Fair warning.
I had four meetings today. The first was at 9am. I skipped gym to prepare. The last was at 3:30. I had to skip meeting 3 because it relocated and i wouldn’t have time to prep meeting 4 so I bowed out in favour of my team expert instead.
Meeting one. Canceled 15 minutes before due to being too busy. I missed gym.
Now gym for me is nothing athletic. I’m no fitness expert or body beautiful. 20 minutes of jogging in place is 100% for my mental health. Without it comes anxiety and a serious drop in performance.
So I’d prepped for a meeting that didn’t happen because of bad time management; and i was feeling crappy.
Meeting four. Cancelled 4 minutes after the meeting was due to start because they had booked back to back meetings that had run over. This time I’d prepped through lunch for the meeting.
I did an envelope calculation and 50% of meetings don’t happen because of double booking or overruns.
Now I’m not a fan of meetings at the best of times. They are frequently superfluous and full of the wrong people. And often when they are called they have no agenda and no takeaways and no goals. I do however prep for all meetings. If I’m there i mean to be there 100%.
That’s why I’m looking at transforming my local work structure. My goal is my own team is to set up a Agile/Scrum system to improve my so so project management skills and eliminate unnecessary meetings.
Well this is a little nerdy (non-surprise) but sometimes when delving into the dark recesses of your SQL database you come across some scary stuff. Places where the foreign keys are very foreign …
That being said I think that it’s always worth saying that, as influential as the work of H.P. Lovecraft is, his extreme xenophobia and racism needs to be acknowledged and criticized.
Proof (for my boss) that I actually did do some work at ANZTRUC 😀
So I made it here on my own. I am nervous and surprised that it seems to be working out OK. My trust levels are never high and travelling on my own always pushes my anxiety up. My ambition and my fear are at constant odds.
There was a good exchange at TLCC this year from participants. Someone reached out with her experience that the conference can be so socially challenging to the point of overwhelming. There were a lot of responses to the affirmative and I suspect a lot more in silent agreement. I think even stronger was the message that this is felt by many. We are not alone and we don’t have to suffer in silence.
Just writng this I want to propose a panel discussion on this. Just our experiences and how we cope.
So that was a year! New job and career change for me and a BIG change of strategy for my new work. It was a great upgrade in my work life but a massive responsibility. We came through it fantastically but at 65 hours a week plus travel I’ve been exhausted.
The good thing is that my second job is related but in the coal face; something I’m really good and confident at. I’m in a big organisation there which gives me a place to look at best work practice. And I’m great at that stuff which helps with the confidence and planning.
To be honest I was dreading coming back to work after the break. It seemed like though I’d put a mountain behind me there was a mountain range stretched out in front. A couple of things though helped me get back on track. The first was sitting down on the first day back and working on a Trello board. Trello is an online Project Management tool that I’d been introduced to during the planning for the business ticketing/website launch. I set up columns for each department that had me in their sights and listed every think I could think of with a reasonable delivery day attached. Inside each of these columns I put Job “cards” that hold the deadlines, Checklists of things to do, and comments. Truth is I actually I set this this online during job 2, in the quiet moments before I got back. Once i had that done the panic dropped a bit.
Just something that I’ve said before. I find that my panic levels drop when I chunk out the work. Then it’s just putting one foot in front of the other. My partner does this with backs of envelopes to great effect.
Anyway back to the mountaineering. Try Trello if you get the chance. I’ve used it to even organise my Dungeons and Dragons game so it can’t be too nerdy right?!
Almost a month really. I’ve been pushing to a big launch for work since I started 6 months ago. It’s a ticketing project that takes a small organisation that outsources it’s immediate CRM needs to an autonomous organisation that calls it’s own shots. I was hired to take the company there six months ago and it’s been a huge learning curve intellectually and emotionally. I feel like I’m running down hill with my legs trying to keep up.
Coupled with that we found out two weeks before launch that the owner was selling our house. Totally crazy.
So we had to move and I had to pull off the biggest job of my career. My anxiety levels were red lining for a week. But the interesting thing was I handled it and on 3hrs sleep a night. I’m actually with this without having slept in 36hrs.
Couple of things were going right. We needed to move. The place was just too small for us and we’d out grown it years ago. This was entirely the wrong time but it was the time we had. The other thing was I was ready. I had my last session with John yesterday and I’m a very different person than I was 18 months ago. Actually I’m the same person but it’s easier to make desicion knowing that I trust my ability to figure it out as I go.
Something that helped was a short seminar (I guess) that I went to at a conference recently. It was about being list in big project management and the advice was, if you feel overwhelmed just start small by putting one foot in front of the other.
That got us through both nightmares.
Sometimes my brain gets full at work and I have to go shake it out – aka go off for a 15 minute (coffee) break. Usually 2 breaks a day. Lunch breaks reallmey don’t do it for me. To cluttered and full of people, which feels more like work to me.
So I’m off home. Post trip I had a few meetings and said farewell to my SDC/STC/CRH/ACM pals. Went to a groovy little breakfast place in the Gaslamp called Broken yolk with a crowd. I went back again this morning. One thing that is really apparent is the size of food. I’m surprised every time I come to the US. Food is massive! I’ve tried to stick to two meals a day and some fruit. No matter how much exercise I’ve done here I think I’ve added 10kg 😮
After the gang left I took a trip up to Balboa park. I’ve been humongously home sick and I really needed to distract myself now that it was just me. I’d been there twice before but Friday is After Dark which is a festival of food trucks and late night museums.
Most interesting thing was that it was my first Uber!! Yeah hello 2017! All the cool kids were doing it at the conference so I thought I’d give it a go. Also what’s app. That was the group chat of choice at #TLCC2017 and with free wi-fi all over the place it was worth it. It’s almost like I work in IT or something?!
I got a burrito and went to the Nat (aka San Diego Natural History Museum) to see the dinosaurs. Main thing for me was how much I impressed myself with my hilarious Instagram feed.
I mean really. I’m hilarious 😐
Next point of business was to see the ball game. Padres we’re playing the Washington Nationals (of whom I’d never heard) and were soundly thrashed. Not that I cared as I got the late bought the cheapest ticket and spent the night watching the game from the best spots in the house. I was happy to buy a Simone a hat (and add a cunning disguise) and stand behind the floor seats. Once that was over I went back to the hotel to Skype home (told you I was into IT!)
So today was check out and logistics anxiety. Anxiety for me means I should keep moving and on schedule. After breakfast (and a Superman comic) at Broken Yolk I checked out of the hotel, had them hold my bags and then took the ferry to Coronado. After wandering around in circles for a while I found a bike hire and followed the 1hr leisure loop suggested by the guy at the desk … until I passed the unmarked turnoff and rode halfway to Mexico. Thank God Australians are good at Olympic cycling because I think I broke a third or two on the way back trying to make the ferry. I made it though, with enough time to buy some more gifts like socks with cats on them and a cute Coronado T-shirt (cause she keeps running out of those things and wearing mine).
With only a couple of hours left I hung out at Seaport Village, bought myself a less sweaty and more touristy shirt, ate a final taco and went back to pick up my bags and Uber to the airport. Got her in plenty of time with a feeling of incredible joy to be traveling home.
I can’t wait to get back even jet lagged and straight to work. Oh well it was pretty great all anxiety considered.
Stay classy San Diego!