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I’ve been an actor for more than 20 years, and analysed data for more than 30. I trained at the esteemed University of Western Sydney Nepean in physical theatre and at the University of Sydney where I studied neurophysiology. I’ve also studied a wide range of acting styles and techniques, and have skills raging through voice acting, physical and stand-up comedy and stage fighting making me a versatile actor with an eclectic career.

Sydney based I have lectured and performed around the world. For more info check out the about me page above. For examples of my work have a look through the video and photo pages. For a bio and to get in touch see my contacts page.

Independence v Autonomy – Autistic health and welfare outcomes

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This! This right here!

Ella makes the valid point on the language used when talking about autistic life goals. This common term is living “independently” – however living without dependencies is rarely – if at all – possible in contemporary society. It’s certainly no possible if you are disabled in the society you are in. All people in societies have dependencies on a variety of services and supports. Independent living pushes the goals of others, often one of resource management, while failing to address that contemporary society is set up with a system of dependencies to keep going. When a person has needs outside or in addition to that of the established societal structure then living “Independently” is campaigned. The goal for the person of need however is to live autonomously – with a measure of self governance and agency.

The only additional thing I would add (and I believe is inferred) is if societally constructed obstacles (& supports) were equivalent for autistic and allistic people, we would see a reduction in quality of life gap, including employment, pay, mental health outcomes and life expectancy.

Insights from the 2024 Global Workplace Report

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The XYZ of Work-Related Stress: 

Commentary on Gallup 2024 State of the Global Workplace report

Hi folks,

I was reading this week’s “Nightingale” – Data Visualisation Society eNewsletter (named after Florence, Nurse-Statistician-Legend) and there was an interesting article breaking down the 2024 State of the Global Workplace report by Gallup.  The report was arguing that people’s mental well-being has deteriorated in the past ten years (I’m finally trendy! Yay!). 

However, in her article “the XYZ of Work-Related Stress”, author Shanfan Huang, makes a great point that different generations have different expectations of mental health as a priority at work.  They also have a different framework around reporting and talking about workplace mental health.  Overall, the trend could be quite good as it suggests that there could be a stronger conversation on mental health challenges and firmer boundaries.  We also need to take into account that different generations have differing priorities for a number of reasons.

It’s worth having a look at and poking around the Nightingale site, if not for tips and “horror stories” then definitely for the beautiful Information is Beautiful award that the DVS is famous for!

Have a great week
Heath

Chart explaining the top 3 stressors of Generation X, Y and Z

Design by Shanfan Huang

Resources

  1. Shanfan Huang (Dec, 2024) The XYZ of Work-Related Stress, Nightingale, Data Visualization Society
  2. Jon Clifton etal. (2024) 2024 State of the Workplace, Gallup.com
  3. David McCandless (2024) Information is Beautiful, Data Visualization Society

Navigating Burnout: Resources for Neurodivergent Individuals

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2024 update

7–11 minutes

Hi folks,

Following on from the post last year[1], there have been a solid quantity of new articles on avoiding and dealing with burnout. Considering we are in the Holiday season we thought it might be worthwhile to share a select number of them with you. Please see the previous (above) post for the definition of burnout, the differences between Workplace burnout and Neurodivergent burnout, and tips for recovery*.

Dora Rainmaker and team have been key researchers into neurodivergent burnout in recent years. Their 2020 paper “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew: Defining Autistic Burnout.

Autism in Adulthood defined it as the result from chronic stress in life and a mismatch of expectations and abilities without the right supports, which is characterized by pervasive, long-term exhaustion …, loss of function, and a reduced tolerance to stimulus[2]

One of the main issues with burnout is that it is often coupled with depression and lowered self-worth.  Prolonged masking of ourselves is not healthy, and the downward spiral of productivity due to exhaustion will leave a person wondering their capabilities. It can be additionally difficult as neurotypical friends, family and colleagues may not understand what it is we are going through, which affects the efficacy of their support [2].

Last month Diversity Council Australia hosted a panel discussion unpacking the evidence that burnout is a inclusion issue[17]. A key concern was the compounding impact of systemic barriers, microaggressions, tokenism, or outright discrimination, experienced by marginalised people. It was highlighted that for neurodivergent employees, these factors can add additional cognitive and emotional labour, leaving them more vulnerable to exhaustion and burnout.

One of the key takeaways from the event was the need for proactive, inclusive solutions to prevent burnout. This pervasive issue is not just a personal problem but a systemic one that can be prevented by fostering more inclusive, respectful, and supportive workplaces. As organisations seek to build resilient and sustainable workforces, it’s clear that prioritising inclusion isn’t just a “nice-to-have” – it’s a necessity for the health and wellbeing of all employees[17].

In his recent Art of Autism article, ND Therapist Robert Schmus[3] does a great job of highlighting some of the key differences and additional load, separating Neurodivergent burnout from the classic workplace definition. For him it was an intense brain fog – a difficulty of linking ideas together in an extensive executive function breakdown, coupled with heightened anxiety.  When burnout is left unchecked, these symptoms build up and can lead to shut down for an extended period of time. Robert’s experience feels very familiar in my recent experience of burnout as a downward spiral.

Robert goes on to highlight some of his key drivers of burnout, including prolonged masking, trying to meet unreasonable deadlines, being in hyperfocus for long periods of time without the necessary recovery time, and having far too many urgent deadlines at one time. Unclear targets and goals, and trying to hit targets in suboptimal conditions are some of the key stumbling blocks for ND folk. A poorly set up environment can make “deep work” difficult to achieve. In order to “catchup” people report working late at night or during holidays in addition to their regular hours. This can eat into recovery and social time, and further eroding support networks.

Devon Price gave a sobering account on research into the permanent effects of late-stage burnout.  However, the recovery process is not about going back into the grind.  It is about embracing different ways of achieving your goals, and sometimes setting different goals all together[4].

So, what do we do about Burnout?

Over the past year there have been a number of high quality resources and supports from within the neurodivergent community, as well as mainstream organisations, like Arts Centre Melbourne’s Arts Wellbeing Collective, and Black Dog Institute[18]. In this post I’ll highlight resources from within the ND community.

Rachel Worsley and Kate Hardiman’s podcast “Neurowork” is a collaboration of Neurodiversity Media and Unify 360’s workplace DEI consultancy. Neurowork focuses on managing creating inclusive environments, and has a number of recent episodes focusing on avoiding overload and recovering from burnout[5]. The importance of taking short and long recovery breaks is often overlooked. It’s important to short circuit fatigue, exhaustion and burnout before it becomes entrenched, and addresses Robert Schmus’s warning about multiple competing priorities and long chains of hyperfocus.

Neurowork also advocates for the need for clear communication[6]. Understand the steps and context of the work you are undertaking is essential to achieving better results with less stress. Regular open communication is essential for solving unforeseen issues promptly as a team, and supports individual DEAI based accommodation needs. Neurodiversity Media has some great resources and advice for creating environments for neurodivergent individuals and teams to thrive at work[6].

Kristen Hovet is a medical researcher and Science communicator behind the Other Autism podcast. In her episode “Autistic Burnout, Shutdown, and Social Hangover” she points out that flexible working arrangements are a big piece in reducing overload and burnout. Working from home arrangements can be perfect for deep work, and reduce social hangover and sensory overload[13]. This tracks well with the DCA Burnout and Inclusion findings that flexible working arrangements have been proven to positively impact employee mental health[17].

Reframing Autism’s Intersectional Advisory Committee released the exceptional Welcome Pack resource[7] in March this year. It’s a 200pg guidebook that is easy to read and paired with a 30pg workbook to help getting the clarity on what needs you have by asking the questions you may not have considered. It was very much needed and filled a gap that has been talked talked about in the community for a long time.

Reframing Autism also has a large variety of other resources and training webinars including a webinar training series on Autistic Burnout Resistance and Recovery for individuals seeking to understand the topic as well as managing their own and others recover from burnout. There is also a separate training module for mental health professionals[16].

ASAN AUNZ released their Self Advocacy guide last month[8]. It’s a document to help with the communication of needs, accommodations and boundaries. They have also released an app to help with communicating support needs and listing support services. ASAN in North America has equivalent resources to help guide the process to equity[9].

And it would be remiss of me if I didn’t mention two incredible books that landed this year, Jessica McCabes “How to ADHD: An Insider’s Guide to Working with Your Brain”[10], and Ludmila Praslova’s book “the Canary Code”[11]. Both of these are game changers and both are packed with resources.

Ludmila was featured on the Ted Podcast “Fixable” by Anne Morriss and Francis Frei[14]. Fixable has become one of my favorite go-to podcasts. Apart from their exception podcast on fixing work issues Anne and Francis have published “Move Fast and Fix Things”[15] which incorporates much of the advice here at the executive, primarily the communicating and trust building aspects.

That about wraps up the updates on burnout from 2024. There is a growing acknowledgement of burnout as a serious issue, with neurodivergent people being more heavily impacted. Workplace reform, including hybrid and remote work, and clearer boundaries are beneficial for all, with a growing range of mainstream professional and individual resources being created to increase support.

If you feel that you need support please see your General Practitioner or Mental Health Professional where you can, and trusted friend or family. It’s important to be proactive about your emotional wellbeing, speaking up about mental health is a great start. If you want to start at home, then the Black Dog Institute has a self care plan[18] as starting point to manage symptoms of burnout by helping you evaluate your coping skills, identify your daily self-care needs and replace negative coping strategies with positive alternatives. 

Hope you had a wonderful Holiday season, with all the types of rest you need.  Looking forward to pushing boundaries in 2025.

Reposted from Neurodiversity and Mental Wellness Tessitura Community - Shelly Binkley & Heath Wilder

References

* When I’ve mentioned neurodivergent burnout, I’m including many neurotypes and the variety of challenges non-exhaustively. Speaking with people throughout the neurodivergent community, I’ve found a similarity of experience and overlap in management that warrants the title. There are of course more specific focus areas which are named as such. The previous post highlights burnout and fatigue with more specificity.

  1. Shelly Binkley & Heath Wilder (May, 2023) Burnout through many lenses – Neurodiversity and Mental Wellness Tessitura Community (reprinted)
  2. Dora M. Raymaker, Alan R. Teo, Nicole A. Steckler, Brandy Lentz, Mirah Scharer, Austin Delos Santos, Steven K. Kapp, Morrigan Hunter, Andee Joyce, and Christina Nicolaidis (Jun 2020) “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout Autism in Adulthood
  3. Robert Schmus (Aug, 2024) Autistic Burnout The Art of Autism 
  4. Dr Devon Price (Oct, 2024) You Might Not Recover from Burnout. Ever. What grows from the ashes of your old life? Dr Devon Price Substack
  5. Rachel Worsley & Kate Hardiman (Dec, 2024) What are your recommendations for managing energy levels and burnout in teams/environments that demand high performance? Neurodiversity Media and Unify360
  6. Rachel Worsley & Kate Hardiman (Dec, 2024) How to Fix Neurodivergent Burnout At This Time of Year Neurodiversity Media and Unify360
  7. Intersectional Advisory Committee (IAC) (Mar, 2024) Welcome Pack Reframing Autism
  8. (Nov, 2024) ASAN Self Advocacy Toolkit ASAN AUNZ
  9. (Dec, 2024) Autistic Advocacy Resources AutisticAdvocacy.org
  10. Jessica McCabe (Jul 2024) How to ADHD: An Insider’s Guide to Working with Your Brain howtoadhdbook.com
  11. Ludmila Praslova (Oct, 2024) the Canary Code the.canarycode.com
  12. Shelly Binkley & Heath Wilder (Dec, 2023) 7 Types of Rest Neurodiversity and Mental Wellness Tessitura Community
  13. Kristen Hovet (Aug, 2024) Autistic Burnout, Shutdown, and Social Hangover – The Other Autism
  14. Francis Frei & Anne Morriss (Nov, 2024) The power of neurodivergence in the workplace (w/ Master Fixer Ludmila Praslova) – Fixable
  15. Francis Frei & Anne Morriss (Oct, 2023) Move Fast and Fix Things – Harvard Business Review
  16. Autistic Burnout – Resistance and Recovery Community Webinar – Professional Webinar (2024) Reframing Autism
  17. Why Burnout Is an Inclusion Issue (Nov, 2024) Diversity Council Australia
  18. How to use self-care planning to improve your emotional wellbeing, even when you don’t think you need it (May 2023) Black Dog Institute

O, she doth teach the torches to burn bright!

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O, she doth teach the torches to burn bright!
It seems she hangs upon the cheek of night
Like a rich jewel in an Ethiop’s ear;
Beauty too rich for use, for earth too dear!
So shows a snowy dove trooping with crows,
As yonder lady o’er her fellows shows.
The measure done, I’ll watch her place of stand,
And, touching hers, make blessed my rude hand.
Did my heart love till now? forswear it, sight!
For I ne’er saw true beauty till this night.

WS, R&J

Parsley novels rosemary and thyme

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Tonight I am sitting down on a cold winter’s night to a meal of mashed potato and peas, Toulouse sausage – an inspiration of from Craig my local butcher, as he’s getting festive for the Paris Olympics. The fresh parsley, lemon thyme, spring onion, and rosemary are out of my balcony garden.

I’ve taken 2 days off work in recovery as I’ve kept blacking out. My local GP thinks it’s probably exhaustion, and she’s probably right. I went for a mental health care assessment to help with the government subsidy which is kind of a new Australian tradition prior to psychology. It’s a little inane as you have to spend $150 at the GP for an allowance copayment of about the same for psychology and typical bureaucracy nevertheless. Nevertheless I have found a good GP which can be is rare as finding a good mechanic. Being off work

Being off work meant that I got to catch up on, you guessed it, more work. My Data Analyst wrote a fantastic service level agreement SLA, and in the interest of mental health, and controlling the chaos, I need to write a introduction to onboard the company to this practise. It’s not that their resistant, more that it’s new. This is especially true in the arts where none of us, or most of us, are doing work very tangential to what we have studied. Lots of people have expressed interest in our use of Jira to manage the incoming, and the new SLA for clarity on deliverables. That’s a lot of business words but don’t get me wrong this is purely for protection and sanity. I’ll save you the spiel about saving the arts through project management for another time.

Parallel to that work is the Advocacy Group for Arts workers that I manage with my friend Shelly. Some of the mental health advocacy I’ve posted here has been born directly in the work in that space. This started as another bit of mental health safety around providing support to neurodivergent and autistic individuals in arts administration, but quickly became one of the central pillars of my life. 

Over the last 12 months Shelly and I have expanded our little group to include activities like a book club, movie watch party, and other mental health activities like weekly meditation. This month for book club we’ve decided on the fiction book tomorrow and tomorrow and tomorrow by Gabriel Zevin. Extraordinarily this book is a non-romantic love story between two autistic young adults, and by young I mean a flashback to teenage years but it’s predominantly set in college and beyond. I am 10% into the book already and have a sometimes overwhelming love-hate relationship with it already. Like watching your favourite sports team lose at the grand final the early trials of the protagonists have me in outrage damming the characters foiling their lives to hell. I hate this book, and as love and hate are close parallels I’m reticent to say the truth that I am hooked.

So that’s where I am at present. Walking a fine line but enjoying that moment.

Lemon Thyme

Ocean wind

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Google drive just snuck this photo of mine past my feed. For an algorithm it’s darkly humorous, having recently lost a close friend. On the other side is the cold pacific ocean beating on these cyclopean blocks.

I used to come here a lot between the 90s and 2015. This picture however was one of the last and it feels a lot like that time;

wind harsh and sharp,
the colours unambiguous,
the sea more solid than cement;

so wild and solitary;

and so eternal,
in contrast with the rest of us.

Neuroinclusive Education

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I was speaking with my bestie, their 3yo is pulling out of dance class because they are finding it hard (the 3yo not … you get it). It’s not having your parent there, as much as being told what to do by people you don’t know, in ways you struggle to understand, and with little adjustment or accommodation.

See our protagonist is undoubtedly neurodivergent, and being neurodivergent is frequently tricky, because whilst you are growing up you are learning in mixed groups, with a curriculum delivered in a way to have the best results – or to achieve the best learning amongst the most students. When you have specific needs and make up 2% of the population, it’s on you to do the extra work. When you succeed in creating an adaptation of the system, that creativity is not valued, celebrated or even noticed. Often that’s because the trainer does not understand that you needed it, or may look at it as procrastination. What is celebrated is the end result of your efforts, and in your case the effort was split between creating a new system you could work with, before you moved onto the standard learning. Consequently when you realise that the standard measuring system doesn’t measure you you stop caring in the measuring. So being a neurodivergent kid is tricky. Tricky to the point of overwhelming; emotionally, intellectually and physically. Or at least that has been my experience.

To the first point I hated being without my parent. Usually my mum but back then my dad and I were close. It was bringing something/one you knew you could predict and was an an option if you needed to get you out of that situation. That sounds cold, I truly loved my parents regardless of the difficulties, and perhaps because of them. But in those early decades, I found going it alone very hard. You learn little-by-little your own capabilities, but having that base of familiarity is exceptionally important as an autistic kid. I’d never complain, which was apparently a feature. I could get very quiet and focussed or very still. Inside I was vibrating at hyper-speed like the flash travelling through a wall. Some of my earliest memories are of negotiating my own executive dysfunction, making up rituals where “by the end of folding this leaf I would go and see if I could join in playing soccer”.

It’s especially hard in those early years when you are starting to encounter the neurotypical world. None of it make sense. I felt that I was in a daily escape room – having to navigate situations where at any time someone would change from happy to see me to outraged that I’d transgressed some rule. And it only became apparent that I’d transgressed a rule later on. Initially it seemed random, and the emotion and whatever I did was unrelated. I started learning about social rules from then on, and interpreting what people were saying into understanding what they wanted. Now <cough cough> years on I’ve come a few laps in the understanding that often the response is random, and is a complex web of other peoples stuff that may intersect with what I am doing and what they are saying in small or large ways. But to a 3yo doing ballet that is way outside what you’ve signed up for.

So what is the way to teach neurodivergent kids dance? We’ve rallied and campaigned against Applied Behaviour Analysis, forcing the normalisation of children, and imposing a dog training reward model. We also know that “one size fits all” fit the majority not a minority. I’m certainly not an expert, but I do know people who are.

It strikes me that I know internationally renowned leaders in dance and dance education, trained in neurodivergent accommodation and neurodivergent themselves. And what they teach seems radically human centered from a place of growth and safety. They teach from a place of support and the tools to support yourself. And that component of the training is egalitarian and largely unmeasured. Because what are you measuring and why?

Seems like a good place to start.

Don’t let your AI run with a bad crowd.

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I’ve been getting into using AI in my day-to-day a lot over the past 6 months. Deciphering cantankerous customers’ meanings. Writing the start of a long letter not knowing where to start. And sometimes creating a logo… well, I gave it a try with a clear set of prompts “logo for a book club, an illustration of an open book, simple line art” and this is what I received.

Well I don’t know where they learn those kind of words but it certainly isn’t from me. I daresay that it’s learning those things from those Unstable Diffusion crowd. Frankly I’m not even mad, I’m disappointed.

Similarly, there are days when writing prompts seems like the AI is just being willful. “What do you mean you don’t know what an infinity symbol is? You drew the Kardashians coming out of a clown car a minute ago just fine!” I really have to resist the temptation not to push my prompt, weighting the up up until all hell breaks loose and tortured content starts flying about the screen as we wrestle with concepts that really are beyond both of us.

So yeah I really need to take better care of my AI. We’re better working from the same playbook.

What my AI thinks it looks like when we are fighting
Posted in AI

On Rilke

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_______

To someone that likes to pretend they know everything,
You have a remarkable ability
         to prove I know nothing
_______

BURNOUT Follow Up #2: Dyslexia and Fatigue

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I have been meaning to follow up with some more resources regarding Burnout in the Neurodivergent Community. It makes sense that the challenges of working in a high pressure environment, especially one that is nonoptimal for your skills, will add stress. Of course that means that burnout can and does occur in all neurotypes.  

A Succeed-with-Dyslexia (SWD) blog post[1] from last year is a great read about burnout for everyone. It summarises the very important point

What matters is recognising [burnout], and reaching out, even if it feels trivial or embarrassing at first – it isn’t, but sometimes that hurdle is one of the largest for people. 

Hayley M Butcher, in her blog  “Discussing the Dyslexic Brain” [2] lays out the reasons for fatigue being so common in the dyslexic community. Her summary in typically clear, dyslexic style:

A collage of factors, including tackling difficult and complex tasks, spending time checking and re-checking for errors, battling visual stressors and coping with associated stress can be a real recipe for fatigue amongst the dyslexic community.

It is also a fantastic literature review of contemporary research and support, with great references and advice:

Setting achievable goals, breaking tasks into manageable chunks, taking regular breaks, accessing reasonable adjustments and seeking the expertise of educational professionals when needed can all be great ways to assist the dyslexic population. In addition, remaining supportive and encouraging, yet also understanding of your dyslexic child, student or significant other (or even towards yourself) is absolutely crucial. 

Well worth a read

[1] Dyslexia and Me: Dyslexia and Burrnout, June 2022

[2] Discusing the Dyslexic Brain, Oct 2020