Author Archives: heathwilder

Unknown's avatar

About heathwilder

Proudly Autistic Director of Customer Experience at Sydney Theatre Co. Sydney based actor - TV Film and Theatre. Long time Sci-Fi & RPG geek My views are (of course) my own

Navigating Burnout: Resources for Neurodivergent Individuals

Posted on by
2

2024 update

7–11 minutes

Hi folks,

Following on from the post last year[1], there have been a solid quantity of new articles on avoiding and dealing with burnout. Considering we are in the Holiday season we thought it might be worthwhile to share a select number of them with you. Please see the previous (above) post for the definition of burnout, the differences between Workplace burnout and Neurodivergent burnout, and tips for recovery*.

Dora Rainmaker and team have been key researchers into neurodivergent burnout in recent years. Their 2020 paper “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew: Defining Autistic Burnout.

Autism in Adulthood defined it as the result from chronic stress in life and a mismatch of expectations and abilities without the right supports, which is characterized by pervasive, long-term exhaustion …, loss of function, and a reduced tolerance to stimulus[2]

One of the main issues with burnout is that it is often coupled with depression and lowered self-worth.  Prolonged masking of ourselves is not healthy, and the downward spiral of productivity due to exhaustion will leave a person wondering their capabilities. It can be additionally difficult as neurotypical friends, family and colleagues may not understand what it is we are going through, which affects the efficacy of their support [2].

Last month Diversity Council Australia hosted a panel discussion unpacking the evidence that burnout is a inclusion issue[17]. A key concern was the compounding impact of systemic barriers, microaggressions, tokenism, or outright discrimination, experienced by marginalised people. It was highlighted that for neurodivergent employees, these factors can add additional cognitive and emotional labour, leaving them more vulnerable to exhaustion and burnout.

One of the key takeaways from the event was the need for proactive, inclusive solutions to prevent burnout. This pervasive issue is not just a personal problem but a systemic one that can be prevented by fostering more inclusive, respectful, and supportive workplaces. As organisations seek to build resilient and sustainable workforces, it’s clear that prioritising inclusion isn’t just a “nice-to-have” – it’s a necessity for the health and wellbeing of all employees[17].

In his recent Art of Autism article, ND Therapist Robert Schmus[3] does a great job of highlighting some of the key differences and additional load, separating Neurodivergent burnout from the classic workplace definition. For him it was an intense brain fog – a difficulty of linking ideas together in an extensive executive function breakdown, coupled with heightened anxiety.  When burnout is left unchecked, these symptoms build up and can lead to shut down for an extended period of time. Robert’s experience feels very familiar in my recent experience of burnout as a downward spiral.

Robert goes on to highlight some of his key drivers of burnout, including prolonged masking, trying to meet unreasonable deadlines, being in hyperfocus for long periods of time without the necessary recovery time, and having far too many urgent deadlines at one time. Unclear targets and goals, and trying to hit targets in suboptimal conditions are some of the key stumbling blocks for ND folk. A poorly set up environment can make “deep work” difficult to achieve. In order to “catchup” people report working late at night or during holidays in addition to their regular hours. This can eat into recovery and social time, and further eroding support networks.

Devon Price gave a sobering account on research into the permanent effects of late-stage burnout.  However, the recovery process is not about going back into the grind.  It is about embracing different ways of achieving your goals, and sometimes setting different goals all together[4].

So, what do we do about Burnout?

Over the past year there have been a number of high quality resources and supports from within the neurodivergent community, as well as mainstream organisations, like Arts Centre Melbourne’s Arts Wellbeing Collective, and Black Dog Institute[18]. In this post I’ll highlight resources from within the ND community.

Rachel Worsley and Kate Hardiman’s podcast “Neurowork” is a collaboration of Neurodiversity Media and Unify 360’s workplace DEI consultancy. Neurowork focuses on managing creating inclusive environments, and has a number of recent episodes focusing on avoiding overload and recovering from burnout[5]. The importance of taking short and long recovery breaks is often overlooked. It’s important to short circuit fatigue, exhaustion and burnout before it becomes entrenched, and addresses Robert Schmus’s warning about multiple competing priorities and long chains of hyperfocus.

Neurowork also advocates for the need for clear communication[6]. Understand the steps and context of the work you are undertaking is essential to achieving better results with less stress. Regular open communication is essential for solving unforeseen issues promptly as a team, and supports individual DEAI based accommodation needs. Neurodiversity Media has some great resources and advice for creating environments for neurodivergent individuals and teams to thrive at work[6].

Kristen Hovet is a medical researcher and Science communicator behind the Other Autism podcast. In her episode “Autistic Burnout, Shutdown, and Social Hangover” she points out that flexible working arrangements are a big piece in reducing overload and burnout. Working from home arrangements can be perfect for deep work, and reduce social hangover and sensory overload[13]. This tracks well with the DCA Burnout and Inclusion findings that flexible working arrangements have been proven to positively impact employee mental health[17].

Reframing Autism’s Intersectional Advisory Committee released the exceptional Welcome Pack resource[7] in March this year. It’s a 200pg guidebook that is easy to read and paired with a 30pg workbook to help getting the clarity on what needs you have by asking the questions you may not have considered. It was very much needed and filled a gap that has been talked talked about in the community for a long time.

Reframing Autism also has a large variety of other resources and training webinars including a webinar training series on Autistic Burnout Resistance and Recovery for individuals seeking to understand the topic as well as managing their own and others recover from burnout. There is also a separate training module for mental health professionals[16].

ASAN AUNZ released their Self Advocacy guide last month[8]. It’s a document to help with the communication of needs, accommodations and boundaries. They have also released an app to help with communicating support needs and listing support services. ASAN in North America has equivalent resources to help guide the process to equity[9].

And it would be remiss of me if I didn’t mention two incredible books that landed this year, Jessica McCabes “How to ADHD: An Insider’s Guide to Working with Your Brain”[10], and Ludmila Praslova’s book “the Canary Code”[11]. Both of these are game changers and both are packed with resources.

Ludmila was featured on the Ted Podcast “Fixable” by Anne Morriss and Francis Frei[14]. Fixable has become one of my favorite go-to podcasts. Apart from their exception podcast on fixing work issues Anne and Francis have published “Move Fast and Fix Things”[15] which incorporates much of the advice here at the executive, primarily the communicating and trust building aspects.

That about wraps up the updates on burnout from 2024. There is a growing acknowledgement of burnout as a serious issue, with neurodivergent people being more heavily impacted. Workplace reform, including hybrid and remote work, and clearer boundaries are beneficial for all, with a growing range of mainstream professional and individual resources being created to increase support.

If you feel that you need support please see your General Practitioner or Mental Health Professional where you can, and trusted friend or family. It’s important to be proactive about your emotional wellbeing, speaking up about mental health is a great start. If you want to start at home, then the Black Dog Institute has a self care plan[18] as starting point to manage symptoms of burnout by helping you evaluate your coping skills, identify your daily self-care needs and replace negative coping strategies with positive alternatives. 

Hope you had a wonderful Holiday season, with all the types of rest you need.  Looking forward to pushing boundaries in 2025.

Reposted from Neurodiversity and Mental Wellness Tessitura Community - Shelly Binkley & Heath Wilder

References

* When I’ve mentioned neurodivergent burnout, I’m including many neurotypes and the variety of challenges non-exhaustively. Speaking with people throughout the neurodivergent community, I’ve found a similarity of experience and overlap in management that warrants the title. There are of course more specific focus areas which are named as such. The previous post highlights burnout and fatigue with more specificity.

  1. Shelly Binkley & Heath Wilder (May, 2023) Burnout through many lenses – Neurodiversity and Mental Wellness Tessitura Community (reprinted)
  2. Dora M. Raymaker, Alan R. Teo, Nicole A. Steckler, Brandy Lentz, Mirah Scharer, Austin Delos Santos, Steven K. Kapp, Morrigan Hunter, Andee Joyce, and Christina Nicolaidis (Jun 2020) “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout Autism in Adulthood
  3. Robert Schmus (Aug, 2024) Autistic Burnout The Art of Autism 
  4. Dr Devon Price (Oct, 2024) You Might Not Recover from Burnout. Ever. What grows from the ashes of your old life? Dr Devon Price Substack
  5. Rachel Worsley & Kate Hardiman (Dec, 2024) What are your recommendations for managing energy levels and burnout in teams/environments that demand high performance? Neurodiversity Media and Unify360
  6. Rachel Worsley & Kate Hardiman (Dec, 2024) How to Fix Neurodivergent Burnout At This Time of Year Neurodiversity Media and Unify360
  7. Intersectional Advisory Committee (IAC) (Mar, 2024) Welcome Pack Reframing Autism
  8. (Nov, 2024) ASAN Self Advocacy Toolkit ASAN AUNZ
  9. (Dec, 2024) Autistic Advocacy Resources AutisticAdvocacy.org
  10. Jessica McCabe (Jul 2024) How to ADHD: An Insider’s Guide to Working with Your Brain howtoadhdbook.com
  11. Ludmila Praslova (Oct, 2024) the Canary Code the.canarycode.com
  12. Shelly Binkley & Heath Wilder (Dec, 2023) 7 Types of Rest Neurodiversity and Mental Wellness Tessitura Community
  13. Kristen Hovet (Aug, 2024) Autistic Burnout, Shutdown, and Social Hangover – The Other Autism
  14. Francis Frei & Anne Morriss (Nov, 2024) The power of neurodivergence in the workplace (w/ Master Fixer Ludmila Praslova) – Fixable
  15. Francis Frei & Anne Morriss (Oct, 2023) Move Fast and Fix Things – Harvard Business Review
  16. Autistic Burnout – Resistance and Recovery Community Webinar – Professional Webinar (2024) Reframing Autism
  17. Why Burnout Is an Inclusion Issue (Nov, 2024) Diversity Council Australia
  18. How to use self-care planning to improve your emotional wellbeing, even when you don’t think you need it (May 2023) Black Dog Institute

O, she doth teach the torches to burn bright!

Posted on by

O, she doth teach the torches to burn bright!
It seems she hangs upon the cheek of night
Like a rich jewel in an Ethiop’s ear;
Beauty too rich for use, for earth too dear!
So shows a snowy dove trooping with crows,
As yonder lady o’er her fellows shows.
The measure done, I’ll watch her place of stand,
And, touching hers, make blessed my rude hand.
Did my heart love till now? forswear it, sight!
For I ne’er saw true beauty till this night.

WS, R&J

Parsley novels rosemary and thyme

Posted on by

Tonight I am sitting down on a cold winter’s night to a meal of mashed potato and peas, Toulouse sausage – an inspiration of from Craig my local butcher, as he’s getting festive for the Paris Olympics. The fresh parsley, lemon thyme, spring onion, and rosemary are out of my balcony garden.

I’ve taken 2 days off work in recovery as I’ve kept blacking out. My local GP thinks it’s probably exhaustion, and she’s probably right. I went for a mental health care assessment to help with the government subsidy which is kind of a new Australian tradition prior to psychology. It’s a little inane as you have to spend $150 at the GP for an allowance copayment of about the same for psychology and typical bureaucracy nevertheless. Nevertheless I have found a good GP which can be is rare as finding a good mechanic. Being off work

Being off work meant that I got to catch up on, you guessed it, more work. My Data Analyst wrote a fantastic service level agreement SLA, and in the interest of mental health, and controlling the chaos, I need to write a introduction to onboard the company to this practise. It’s not that their resistant, more that it’s new. This is especially true in the arts where none of us, or most of us, are doing work very tangential to what we have studied. Lots of people have expressed interest in our use of Jira to manage the incoming, and the new SLA for clarity on deliverables. That’s a lot of business words but don’t get me wrong this is purely for protection and sanity. I’ll save you the spiel about saving the arts through project management for another time.

Parallel to that work is the Advocacy Group for Arts workers that I manage with my friend Shelly. Some of the mental health advocacy I’ve posted here has been born directly in the work in that space. This started as another bit of mental health safety around providing support to neurodivergent and autistic individuals in arts administration, but quickly became one of the central pillars of my life. 

Over the last 12 months Shelly and I have expanded our little group to include activities like a book club, movie watch party, and other mental health activities like weekly meditation. This month for book club we’ve decided on the fiction book tomorrow and tomorrow and tomorrow by Gabriel Zevin. Extraordinarily this book is a non-romantic love story between two autistic young adults, and by young I mean a flashback to teenage years but it’s predominantly set in college and beyond. I am 10% into the book already and have a sometimes overwhelming love-hate relationship with it already. Like watching your favourite sports team lose at the grand final the early trials of the protagonists have me in outrage damming the characters foiling their lives to hell. I hate this book, and as love and hate are close parallels I’m reticent to say the truth that I am hooked.

So that’s where I am at present. Walking a fine line but enjoying that moment.

Lemon Thyme

Ocean wind

Posted on by
Reply

Google drive just snuck this photo of mine past my feed. For an algorithm it’s darkly humorous, having recently lost a close friend. On the other side is the cold pacific ocean beating on these cyclopean blocks.

I used to come here a lot between the 90s and 2015. This picture however was one of the last and it feels a lot like that time;

wind harsh and sharp,
the colours unambiguous,
the sea more solid than cement;

so wild and solitary;

and so eternal,
in contrast with the rest of us.

Neuroinclusive Education

Posted on by

I was speaking with my bestie, their 3yo is pulling out of dance class because they are finding it hard (the 3yo not … you get it). It’s not having your parent there, as much as being told what to do by people you don’t know, in ways you struggle to understand, and with little adjustment or accommodation.

See our protagonist is undoubtedly neurodivergent, and being neurodivergent is frequently tricky, because whilst you are growing up you are learning in mixed groups, with a curriculum delivered in a way to have the best results – or to achieve the best learning amongst the most students. When you have specific needs and make up 2% of the population, it’s on you to do the extra work. When you succeed in creating an adaptation of the system, that creativity is not valued, celebrated or even noticed. Often that’s because the trainer does not understand that you needed it, or may look at it as procrastination. What is celebrated is the end result of your efforts, and in your case the effort was split between creating a new system you could work with, before you moved onto the standard learning. Consequently when you realise that the standard measuring system doesn’t measure you you stop caring in the measuring. So being a neurodivergent kid is tricky. Tricky to the point of overwhelming; emotionally, intellectually and physically. Or at least that has been my experience.

To the first point I hated being without my parent. Usually my mum but back then my dad and I were close. It was bringing something/one you knew you could predict and was an an option if you needed to get you out of that situation. That sounds cold, I truly loved my parents regardless of the difficulties, and perhaps because of them. But in those early decades, I found going it alone very hard. You learn little-by-little your own capabilities, but having that base of familiarity is exceptionally important as an autistic kid. I’d never complain, which was apparently a feature. I could get very quiet and focussed or very still. Inside I was vibrating at hyper-speed like the flash travelling through a wall. Some of my earliest memories are of negotiating my own executive dysfunction, making up rituals where “by the end of folding this leaf I would go and see if I could join in playing soccer”.

It’s especially hard in those early years when you are starting to encounter the neurotypical world. None of it make sense. I felt that I was in a daily escape room – having to navigate situations where at any time someone would change from happy to see me to outraged that I’d transgressed some rule. And it only became apparent that I’d transgressed a rule later on. Initially it seemed random, and the emotion and whatever I did was unrelated. I started learning about social rules from then on, and interpreting what people were saying into understanding what they wanted. Now <cough cough> years on I’ve come a few laps in the understanding that often the response is random, and is a complex web of other peoples stuff that may intersect with what I am doing and what they are saying in small or large ways. But to a 3yo doing ballet that is way outside what you’ve signed up for.

So what is the way to teach neurodivergent kids dance? We’ve rallied and campaigned against Applied Behaviour Analysis, forcing the normalisation of children, and imposing a dog training reward model. We also know that “one size fits all” fit the majority not a minority. I’m certainly not an expert, but I do know people who are.

It strikes me that I know internationally renowned leaders in dance and dance education, trained in neurodivergent accommodation and neurodivergent themselves. And what they teach seems radically human centered from a place of growth and safety. They teach from a place of support and the tools to support yourself. And that component of the training is egalitarian and largely unmeasured. Because what are you measuring and why?

Seems like a good place to start.

Don’t let your AI run with a bad crowd.

Posted on by

I’ve been getting into using AI in my day-to-day a lot over the past 6 months. Deciphering cantankerous customers’ meanings. Writing the start of a long letter not knowing where to start. And sometimes creating a logo… well, I gave it a try with a clear set of prompts “logo for a book club, an illustration of an open book, simple line art” and this is what I received.

Well I don’t know where they learn those kind of words but it certainly isn’t from me. I daresay that it’s learning those things from those Unstable Diffusion crowd. Frankly I’m not even mad, I’m disappointed.

Similarly, there are days when writing prompts seems like the AI is just being willful. “What do you mean you don’t know what an infinity symbol is? You drew the Kardashians coming out of a clown car a minute ago just fine!” I really have to resist the temptation not to push my prompt, weighting the up up until all hell breaks loose and tortured content starts flying about the screen as we wrestle with concepts that really are beyond both of us.

So yeah I really need to take better care of my AI. We’re better working from the same playbook.

What my AI thinks it looks like when we are fighting
Posted in AI

On Rilke

Posted on by 
_______

To someone that likes to pretend they know everything,
You have a remarkable ability
         to prove I know nothing
_______

BURNOUT Follow Up #2: Dyslexia and Fatigue

Posted on by

I have been meaning to follow up with some more resources regarding Burnout in the Neurodivergent Community. It makes sense that the challenges of working in a high pressure environment, especially one that is nonoptimal for your skills, will add stress. Of course that means that burnout can and does occur in all neurotypes.  

A Succeed-with-Dyslexia (SWD) blog post[1] from last year is a great read about burnout for everyone. It summarises the very important point

What matters is recognising [burnout], and reaching out, even if it feels trivial or embarrassing at first – it isn’t, but sometimes that hurdle is one of the largest for people. 

Hayley M Butcher, in her blog  “Discussing the Dyslexic Brain” [2] lays out the reasons for fatigue being so common in the dyslexic community. Her summary in typically clear, dyslexic style:

A collage of factors, including tackling difficult and complex tasks, spending time checking and re-checking for errors, battling visual stressors and coping with associated stress can be a real recipe for fatigue amongst the dyslexic community.

It is also a fantastic literature review of contemporary research and support, with great references and advice:

Setting achievable goals, breaking tasks into manageable chunks, taking regular breaks, accessing reasonable adjustments and seeking the expertise of educational professionals when needed can all be great ways to assist the dyslexic population. In addition, remaining supportive and encouraging, yet also understanding of your dyslexic child, student or significant other (or even towards yourself) is absolutely crucial. 

Well worth a read

[1] Dyslexia and Me: Dyslexia and Burrnout, June 2022

[2] Discusing the Dyslexic Brain, Oct 2020

Mental Health Monday: Burnout through many lenses

Posted on by

(This piece of writing was created by my incredible friend Shelly and myself for our Neurodiversity and Wellness, Arts and Culture community that we chair)

You might hear the term “Burnout” talked about a lot and maybe you’ve felt that way yourself. 

But what is burnout?

How does burnout differ between different communities?

And what can you do about it for your co-workers, friends and yourself?

Defining Burnout

The World Health Organisation (WHO) points out that whilst burn-out is included in the 11th Revision of the International Classification of Diseases (ICD-11) as an occupational phenomenon, it is not classified as a medical condition.[1] 

Burn-out is defined in ICD-11 as:

“a syndrome conceptualised as resulting from chronic workplace stress that has not been successfully managed. It is characterised by three dimensions:

•  feelings of energy depletion or exhaustion;
•  increased mental distance from one’s job, or feelings of negativism or cynicism related to one’s job; and
•  reduced professional efficacy.”

WORLD HEALTH ORGANIZATION (MAY, 2019)

However, as the boundaries between work and home have blurred throughout the covid years, the occupational distinction has also become less fitting.  Evidence shows that burnout makes no distinction between paid or unpaid work and people undertaking unpaid home or care duties can also be impacted[2]. 

The Black Dog Institute and the UNSW School of Psychiatry[2a] have carried out studies into factors that commonly concur with burnout, including:

  • Anxiety/stress
  • Depression and low mood
  • Irritability and anger
  • Sleep disturbances
  • Lack of motivation or passion
  • Lack of concentration, memory loss or brain fog
  • Withdrawal from others
  • Physical symptoms such as aches, headaches, nausea and low libido
  • Emotional fragility

It raises the chicken v egg question on whether these factors are a cause of or caused by burnout, or whether they are all a symptom of an underlying issue. The same researchers are also undertaking a followup study to further investigate the features of burnout and its relationship with depression.

Neurodivergent Burnout

In the neurodivergent communities, conversations about burnout are quite common.  In fact many neurodivergent people come to uncover their uniqueness due to the burnout of trying to fly under the radar.  The challenges of living and working in a society not designed for us can mean frequent overload that can push us into meltdown, shutdown, and burnout.  Also life-changes can exacerbate challenges, for example transitioning from school to work, experiencing a mental health crisis, or the death of someone close[13].  Stigma can make prevention and recovery even harder.  

So how does neurodivergent burnout differ from the WHO defined burnout? 

A notable difference is in the causes of burnout [6]. Some of factors that lead to burnout for ND folk are:

  • Repeated sensory overload
  • Long term masking
  • Having social/sensory needs minimised by others due to appearing “fine” (i.e. “successful” masking)⁠
  • Not having access to the appropriate level of supports & accommodations ⁠
  • Difficult or unreachable expectations from family, school, work, or society
  • Executive Functioning fatigue following a number of stressors or transitions
  • When the overall load exceeds abilities + supports = burnout

But impacts of burnout can also present differently, including [7]:

  • Loss of skills
  • Loss of interest in dedicated interest areas
  • Emotional regulation issues
  • Added anxiety and depression

A study by Dr Dora Rainmaker at Portland State University[11], involved interviews with autistic adults. Whilst her studies have been in the autistic population, the sentiment aligns with other neurodivergent communities. Findings included:

 “… struggling with independent living, loss of self-belief, and being frightened that the loss of skills from the autistic burnout might be permanent.”

Dr. Dora Rainmaker

The results also pointed to a “lack of empathy from neurotypical people, who had difficulty understanding or relating to the autistic person’s experiences.”

What can we do about it?

Policy

On a policy level, it may be good to know that groups such as the Black Dog Institute are campaigning for workplace reform through methods such as their White Paper[9]. Actions your organisation can take include:

  1. Evidence-based training for managers regarding the resources available and actions they can take to recognise and respond to mental health risk factors in the workplace.
  2. Building mentally healthy workplaces.
  3. Taking immediate action on bullying, sexual harassment and assault.

Self-care

The most important way to recover is prioritising self-care as a protective measure against burnout and other mental health issues.  However self-care is often the first thing that gets sacrificed to work demands and stress.

So what is self care? 

“Self-care refers to the activities and practices that we deliberately choose to engage in on a regular basis to maintain and enhance our health and wellbeing.  Regular practices may include exercise, reading, meditation, disconnecting from technology, or talking with a friend or family member.”[10]

“When you take time for yourself to rest, reset, and rejuvenate you will actually have more energy to meet the demands of daily life as well as reduce or avoid the symptoms of mental ill-health.” 

Dr Jan Orman

But what does Neurodivergent self-care look like?

For Neurodivergent folk there are a few ways to recover in addition (or instead of) neurotypical burnout recovery.  In fact it’s worth noting that many neurotypical recovery techniques and interventions can be ineffective or even more overwhelming. Social support can add to overload, and even mindfulness may need a special touch as described by Sue Hutton[14].  

Neurodivergent affirming recovery methods can include [8, 11, 12]:

  • Deliberate reining back of tasks and responsibilities
  • Prioritising rest, recognising the necessity of healing, and equitable productivity
  • Careful unmasking where appropriate
  • Slow refocus on areas of interest and energy giving environments like nature
  • Outsource executive functioning tasks
  • Attending to sensory needs

Self-care Strategy

Prevention of burnout comes with increased awareness of needs and accommodation for those by workplaces, family and community.  Clear boundaries and formal supports are also key to keeping the overload at bay.

The Black Dog institute has a comprehensive self care template designed so that you can craft a personal self-care strategy that works for you. It will guide you through the 4 steps of self-care planning:

Step 1 | Evaluate your coping skills

Step 2 | Identify your daily self-care needs

Step 3 | Reflect. Examine. Replace.

Step 4 | Create your self-care plan

You can download a copy HERE [10]

Follow up

If you are feeling burnout, run down or depression it’s worth talking to a mental health professional starting with your doctor.  But if you are feeling that that’s a big first step try reaching out to the people around you and in your communities. Talking can help and it can make that journey more manageable by taking it one step at a time.

Go well!

PS– what to learn more? Check out this upcoming workshop on Autistic Burnout:

__

Resources

  1. Burn-out an “occupational phenomenon”: International Classification of Diseases World Health Organization (May, 2019)
  2. Experiencing burnout? Here’s what to do about it BlackDog Institute (Feb, 2023)
    1. Burnout diagnosis one step closer with new clinical checklist and predictor of which personalities are most at risk BlackDog Institute (Jul, 2021)
  3. The Cost of Workplace Stress in Australia Medibank (Aug, 2008)
  4. Importance of self-care planning | Black Dog Institute 
  5. Autistic burnout, explained https://doi.org/10.53053/BPZP2355 Spectrum News (Mar, 2020)
  6. Autism and ADHD Burnout Recovery — Insights of a Neurodivergent Clinician Dr Neff, Neurodivergent insights (Jun, 2022)
  7. “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout | Autism in Adulthood  (Raymaker et al., 2021)
  8. Navigating Autistic Burnout: Self-care strategies to recover and recalibrate – Reframing Autism Justine Field, Reframing Autism (Jan, 2023)
  9. Modern work: how changes to the way we work are impacting Australians’ mental health Black Dog Institute
  10. Importance of self-care planning Black Dog Institute
  11. CharWrites info graphics on Burnout recovery Char (Mar, 2023)
  12. Neurodivergent Dawn on ND Burnout and Recovery Neurodivergent Dawn (Jun, 2022)
  13. Understanding autistic burnout Dora Raymaker, National Autistic Society (Mar, 2022)
  14. Learning to Celebrate Neurodiversity in Mindfulness Sue Hutton (Oct, 2020)

Autism Tests and the Arrogance of “Normality”

Posted on by

There are a bunch of fun and interesting tests that do the rounds of the neurodivergent and autistic communities every now and again. Some draw from rich experience and colour of the community, whilst others are built from the doctrine of Asperger* & Lovaas* treating us as if “they are not people in the psychological sense”. Yes ND and autistic people are horrendously marginalised still, so when doing any of these tests it’s important to remember that it’s not a Cosmo quiz and experiences may vary.

(Before I get too soap-boxy) the folks over at Embrace Autism have collected a bunch of them and give each a description, a discussion on merits and the evolution of the test, notes on scoring and provide a comments page – always interesting. I’m looking for some fun ones for a meetup and this is a great place to go. I did however get sucked into the tractor beam of the RMET and I unpack my opinion below.

Reading the Mind in the Eyes test

Yep 10 in 16 minutes. RMET is so arbitrary and forced. There are recent studies of peoples thoughts of what they looked like when frightened compared to what they actually looked like and they are nothing alike.

Like the TASIT, RMET is a performative model of what neurotypical society agree are the proxies for emotion in the same way that sitcoms and soap opera’s use codified behaviour to indicate emotion. They are not testing reactive emotion displays but artistic expression of emotion. I was an actor and director for 25 years and am an executive on Australia’s largest theatre company. I know some of the actors in the TASIT test and that is acting – not real life. Say what you will about “method” acting or portraiture, they are devices to tell clear narrative. Life is not. I spent decades learning to act professionally neurotypical because (as Damian Milton proposes) NTs were equally bad at recognising my emotions. With context and knowledge I’m quite good at determining a persons mood and situation. But more to the point of empathy I act on it.

What is actually interesting is that the times I’ve met up with new autistic friends they are much more attuned to my emotional state with a much more limited exposure. This has always felt like we are naturally attuned to one another. That’s a metaphor rather than a factual statement but still often it’s with other ND and autistic folk that I get close to a feeling of home.

TASIT and RMET basically boil down to a culturally specific ink blot test, or a test to see if you have the cultural secret to enter a club.

* the former a Nazi scientist who experimented on children and the latter one of the creators of gay conversion therapy and the founder of Applied Behavioural Analysis – still the western standard therapy for autistic children. Summarised here